Community-Specific Cancer Care
Who You Are Matters
Cancer doesn't discriminate, but the cancer industrial complex does.
What needs to change to improve cancer care for racially, ethnically, and geographically minoritized cancer patients?
- Increased inclusion and participation in clinical trials
- Reduction in disparities in accessing quality health care
- Increased access to health insurance and affordable, quality care
- Increased diversity in the health care workforce
- Improved health equity
- Increased awareness of and access to screening & preventive care
- Expanded availability of cutting-edge cancer care to rural and underserved communities
SDOH: Social Determinants of Health
Social Determinants of Health are defined by the World Health Organization as “the conditions in which people are born, grow, work, live, and age, and the wider set of forces and systems shaping the conditions of daily life.”
Examples of Social Determinants of Health per HHS:
- Access to comprehensive, high-quality health care services
- Safe housing, transportation, and neighborhoods
- Racism, discrimination, and violence
- Education, job opportunities, and income
- Access to nutritious foods and physical activity opportunities
- Polluted air and water
- Language and literacy skills
For cancer patients in particular, Social Determinants of Health have impacts on...
- health insurance coverage
- convenient access to quality care (within a reasonable geography)
- access to and awareness of innovative treatment options
- access to and awareness of screening and preventive care
- access to and awareness of clinical trials and opportunities to participate
- access to 2nd opinions
- access to and coverage of molecular testing/tumor genomic profiling
- access to and coverage of genetic testing
- access to and awareness of financial assistance programs and resources
"The notion of treating all patients the same (equality) must instead be replaced by the approach of treating patients where they are (equity); as clearly articulated by Braveman et al [17], “those with the greatest needs and fewest resources require more, not equal, effort and resources to equalize opportunities.”
- (Source: Financial Toxicity: A Barrier to Achieving Health Equity in Cancer Care, Seeley-Tucker, D., 2023)
"As cancer treatments have become increasingly efficacious, survival disparities have widened as the benefits of new therapies are unequally appreciated by different racial and ethnic groups, such that minorities are less likely to receive the standard of care for the type and stage of cancer they have been diagnosed with.
Cancer care is impacted by a lack of diversity within the oncology workforce. Despite small increases in diversity of medicine as a whole; racial, ethnic, and gender diversity within oncologic specialties has not increased in parallel. The lack of congruence between patients and providers can lead to less effective communication, worse satisfaction with care, and decreased participation in clinical trials, further contributing to health inequities."
- (Source: Social determinants of health, workforce diversity, and financial toxicity: A review of disparities in cancer care, Beltran, S. et al., 2022)
Lack of Diversity in Clinical Trials
Clinical trials are often not comprised of a representative patient pool in the US. They are primarily made up of research participants who are white, healthy, of a certain age, and have few or no comorbidities. The data derived from these trials is used to put guidelines in place for screening and treatment, and when the data is not representative of the population as a whole, the resulting treatments aren't either. Research populations lacking representation and diversity, result in cancer drugs and treatments designed and optimized for white bodies. When this is the case, and it often is, more trial and error occurs when trying to select and administer therapies for diverse patient populations. Why? Because they were not included in clinical trial research so we don't actually know what's best for Black men, or Native Hawaiian women, for example. This can lead to serious downstream health problems. Early cancers can be missed, leading to later diagnosis when treatment options are more limited, and when curative options may be completely off the table. A common and deeply troubling example of the impact this can have is the diagnosis of young Black women with TNBC (triple negative breast cancer) years before they would qualify for a screening mammogram. Mammogram screening schedules are in place based on research that was, you guessed it, optimized for white women. We're not helping anyone if we're only helping white patients.
I believe emerging treatment selection tests, used to determine the best treatment options for a patient based on individual characteristics, should be covered in full specifically for patient populations who deviate from the "sample patients" in clinical studies. These are the patients who need the most support and guidance because the accepted data, on which everything is based, does not represent them.
AACR Cancer Disparities Progress Report 2022 Graphics
The American Association for Cancer Research (AACR) recently released the 2023 report. This section will updated shortly to reflect their more recent findings. You can access the 2023 report here.
AACR Cancer Disparities Progress Report Statistics (2022)
More content & support coming soon!
There is more in store for this page so please stay tuned. In the meantime, there are LOADS of resources below regarding cancer care for many communities including Black, Jewish, Hispanic, Adolescent & Young Adult, Pacific Islanders, Native Americans, and more.
If you haven't yet, please check out the Newly Diagnosed page for a thorough overview of the early cancer experience.
I raise up my voice—not so that I can shout, but so that those without a voice can be heard. … We cannot all succeed when half of us are held back.
Malala Yousafzai
Community-Specific Resources for Patients Facing cancer
We regularly review these resources to make sure that all links work correctly and are of value to our visitors. If you find a link that isn't working, please email coral@oncologyoffense.com. If you would like us to consider adding a resource to our list, please email us with details.
National Institute on Minority Health & Health Disparities (NIMHD) (part of NIH) Many populations in America, whether defined by race, ethnicity, immigrant status, disability, sex, gender, or geography, experience higher rates of certain diseases and more deaths and suffering from them compared with the general population. While the diversity of the American population is one of the nation’s greatest assets, one of its greatest challenges is reducing the profound disparity in health status of its racial and ethnic minority, rural, low-income, and other underserved populations.
Vital Options International has expanded its mission to become a global health foundation focused on health education, supporting the financial needs of qualified patients and their families and giving patients and caregivers a voice through community and advocacy. Addressing Today's Health Disparities and Challenges Through Education, Advocacy and Support. Voice For Life®
Home | Vital Options International
Intercultural Cancer Council promotes policies, programs, partnerships, and research to eliminate the unequal burden of cancer among racial and ethnic minorities and medically underserved populations in the United States and its associated territories.
Intercultural Cancer Council – ICC
Diverse Elders Coalition: Founded in 2010, the Diverse Elders Coalition (DEC) advocates for policies and programs that improve aging in our communities as racially and ethnically diverse people; American Indians and Alaska Natives; and lesbian, gay, bisexual and/or transgender (LGBT) people.
BIPOC Women's Health Network Cancer Resources
https://bipocwomenshealth.com/reproductive-health/gynaecology-resources/
Cancer Lifeline BIPOC Cancer Support Group (online). People who identify as members of black, indigenous, and other people of color (BIPOC) and are living with a cancer diagnosis or have a loved one living with a cancer diagnosis are invited to join this group.
https://cancerlifeline.org/services/support-groups/bipoc-cancer-support-group/
Diverse Health Hub recognizes that not everyone is getting the same out of healthcare. Our mission is to amplify awareness of the inequities in diagnostic testing and to reduce disparities in health outcomes for all people.
https://www.diversehealthhub.org/
Alliance of Minority Physicians (AMP) The mission of AMP is to develop leaders in clinical, academic, and community medicine, through active recruitment, career development, mentorship, social engagement and community partnership geared towards underrepresented faculty, housestaff, and medical students at Penn Medicine, The Children's Hospital of Philadelphia (CHOP), and the Perelman School of Medicine.
http://www.allianceofminorityphysicians.org/
Cancer Disparities (NCI) Cancer affects all population groups in the United States, but due to social, environmental, and economic disadvantages, certain groups bear a disproportionate burden of cancer compared with other groups. Cancer disparities (sometimes called cancer health disparities) are differences in cancer measures such as: incidence (new cases), prevalence (all existing cases), mortality (deaths), survival (how long people survive after diagnosis), morbidity (cancer-related health complications), survivorship (including quality of life after cancer treatment), financial burden of cancer or related health conditions, screening rates, and stage at diagnosis
https://www.cancer.gov/about-cancer/understanding/disparities
The Biology of Cancer Health Disparities (NCI) Health-related differences in disease incidence and outcomes among distinct racial and ethnic groups, known as health disparities, are thought to reflect the interplay of socioeconomic factors, culture, diet, stress, the environment, and biology. The least understood of these factors is the role of biology. With the advent of advanced genomics and other molecular technologies and the growing sophistication of computational tools, an understanding of how biology contributes to health disparities and how biological factors interact with other relevant factors, such as diet and the environment, may finally be within our reach.
https://www.cancer.gov/research/progress/discovery/biology-cancer-health-disparities
Tigerlily Foundation is A National Women’s Health And Oncology Organization Providing Education, Awareness, Advocacy And Hands-On Support To Young Women (15-45) – Before, During And After Cancer. Through our programs, we seek to educate and empower women of all backgrounds including those at heightened risk, those facing health disparities, and those with less access to care. We strive to improve the quality of life and end isolation among cancer survivors. Most importantly, we encourage and endeavor to empower women at every stage of their health journey, and to show them that they are not alone, but are beautiful, strong like the tiger and the lily, and that they can be transformed, during and after cancer.
https://tigerlilyfoundation.org/
Cancer mortality rates by racial and ethnic groups in the United States, 2018-2020 (Haque, Anika T et al. Journal of the National Cancer Institute vol. 115,7 (2023): 822-830.) "In the United States, cancer is the second most common cause of death, accounting for approximately 602 400 deaths in 2020 (1). There are notable racial and ethnic disparities in cancer death rates, driven by differences in cancer incidence and survival, barriers to accessing health care, and other structural factors (2-4). During 2013-2017, cancer incidence rates were highest in White and Black individuals compared with Asian and Pacific Islanders (aggregated group), American Indian/Alaska Native (AI/AN), and Hispanic and Latino individuals (5). Additionally, Black and AI/AN cancer patients had lower 5-year cancer survival rates across most cancers compared with White cancer patients, highlighting racial and ethnic disparities in cancer outcomes (6). As a result, the highest cancer death rates were observed among Black individuals in the United States in 2019 (7)."
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10323905/
Social determinants of health, workforce diversity, and financial toxicity: A review of disparities in cancer care (Sara E. Beltrán Ponce, Charles R. Thomas, Dayssy A. Diaz, Social determinants of health, workforce diversity, and financial toxicity: A review of disparities in cancer care, Current Problems in Cancer, Volume 46, Issue 5, 2022, 100893, ISSN 0147-0272)
https://www.sciencedirect.com/science/article/abs/pii/S0147027222000538
AACR Cancer Disparities Progress Report 2022 aims to increase awareness of the progress in understanding and addressing disparities across the cancer care continuum , and to emphasize the vital importance of cancer health disparities research in saving lives. The report underscores the need for robust, sustained, and predictable annual federal funding increases for the entities that fuel progress against cancer health disparities, in particular, NIH, NCI, and CDC.
https://cancerprogressreport.aacr.org/disparities/
United Voices for Newcomer Rights We cultivate educational, economic, cultural, social, and physical and mental health resources in partnership with newcomers to empower newcomers to achieve system change that supports their well-being and integration in their new communities. We envision New Mexico leading the country in effective refugee resettlement and immigration policies and programs, which humanely support newcomers, build on and learn from the strengths that newcomers bring, and promote newcomer well-being and civic engagement in order to work towards a world where all individuals, families, and communities are able to reach their fullest potential. Our newcomer-led team works with newcomer individuals, families, and communities because we value the strengths and knowledge they bring to the United States while recognizing the challenges they face upon resettlement here.
World Health Organization (WHO) Commission on Social Determinants of Health
Point of Pride Resource Library (topics include crisis & emotional support, mutual aid/emergency funds, bail funds, Indigenous & Black-Centered Funds, AAPI-Centered Funds, Black & African American, AAPI LGBTQ resources and organizations, trans-centered resources, and more.)
https://www.pointofpride.org/resource-library
The Intercultural Cancer Council promotes policies, programs, partnerships, and research to eliminate the unequal burden of cancer among racial and ethnic minorities and medically underserved populations in the United States and its associated territories.
www.interculturalcancercouncil
Understanding Cancer Health Disparities (Verywell Health) Everyone gets sick from time to time. However, some groups of people are more at risk of developing serious illnesses, such as cancer. Factors like race, income, and age can make it more difficult for certain groups to access medical care—including diagnosing and treating cancer.
https://www.verywellhealth.com/featured/original-plus/understanding-cancer-health-disparities
Living After Cancer Treatment Brochures (Multicultural) (Livestrong) These brochures offer resources related to the physical, emotional, and day-to-day concerns of people affected by cancer after treatment. These culturally relevant, user-friendly brochures are about cancer survivorship. The series consists of 13 brochures, each containing the same general content, but adapted to be culturally relevant to the needs of a specific audience.
https://www.livestrong.org/what-we-do/living-after-cancer-treatment-brochure
Cancer Facts & Figures for African American/Black People (ACS) For most types of cancer, Black people have the highest death rate and shortest survival of any racial/ethnic group in the United States. Black women are 41% more likely to die from breast cancer than White women. That statistic is even more striking because fewer Black women are diagnosed with breast cancer than White women.
Trends in Cancer Mortality Among Black Individuals in the US From 1999 to 2019 (Lawrence WR, McGee-Avila JK, Vo JB, et al. JAMA Oncol. 2022;8(8):1184–1189.) "In this cross-sectional study of 1, 361,663 deaths from cancer among Black individuals, although cancer mortality decreased considerably among Black individuals from 1999 to 2019, the cancer mortality rate was higher among Black men and women than in other racial and ethnic groups in 2019. The findings suggest that resources should be allocated toward eliminating social inequalities and barriers throughout the cancer control continuum that contribute to substantially higher cancer mortality rates among Black men and women."
https://jamanetwork.com/journals/jamaoncology/fullarticle/2792530
Touch: The Black Breast Cancer Alliance drives the collaborative efforts of patients, survivors, advocates, advocacy organizations, health care professionals, researchers and pharmaceutical companies to work collectively, with accountability, towards the common goal of eradicating Black Breast Cancer.
The National Medical Association (NMA) is the collective voice of African American physicians and the leading force for parity and justice in medicine and the elimination of disparities in health.
Must-Read Advice From Black Doctors On Preventing and Battling Cancer: What does it take to stay cancer-free? And what should you do once diagnosed? Essence got nine smart tips from African-American M.D.'s on saving your life (Essence, 2020)
https://www.essence.com/lifestyle/health-wellness/best-advice-black-doctors-cancer/
Black in Cancer Strengthening Networks and Highlighting Black Excellence in Cancer Research and Medicine. Black in Cancer was founded in 2020 and aims to strengthen the network between Black people in the cancer space whilst highlighting Black excellence in cancer research and medicine. The work we do can be further disseminated into two key areas – the BiC Pipeline Program (BiCPP) and the Cancer Awareness Project (CAP). Our initiatives for cancer awareness strive to educate the community and enhance participation in clinical trials by empowering patients and advocates with culturally informed information in an accessible manner. Our collaborative efforts with the FDA have extended to two cycles of the annual Black Family Cancer Awareness Week, held in June over the Juneteenth weekend.
https://www.blackincancer.com/
The Chrysalis Initiative exists to disrupt outcome disparities within breast cancer, so every patient receives the care they deserve. By providing patients with mentoring and resource navigation and equipping Black women (and other disparate groups) with the opportunity and education to assess their breast cancer risk, we are closing the gap one story at a time.
The Chrysalis Initiative launched BC Navi to close this healthcare gap. This digital resource provides Black women (and other disparate groups) with the tools to recognize and address racism in their cancer care, including 1:1 coaching, accessing resources and a patient community, and viewing a patient-curated provider directory—all with the purpose of erasing the line of inequality in breast cancer care.
https://thechrysalisinitiative.org/
BC Navi App (The Chrysalis Initiative) BC Navi equips Black women with breast cancer with he tools they need to recognize, share, and address gaps in healthcare. Patients with breast cancer can find and create reviews and ratings about the quality of care provided at healthcare centers in their area. These reviews will hold hospitals and doctors accountable and to a standard of transparency and equality. By encouraging transparency and accountability for providers while giving access to information and resources for the patients; light is shed on experiential realities. This is an all-important step in reforming bad practices and reimagining treatment and screening protocols for more equitable outcomes. Within the app, you will be able to reach out for help, resources, and directly connect with your coach!
BC Navi App - The Chrysalis Initiative
Trials of Color advocates on behalf of African American and other underserved minority communities that have resource-deprived cancer survivors. The sole reason behind this initiative is that many minority communities are not sufficiently represented in critical clinical trials, and do not have equal access to quality care.
Sisters Network: A National African American Breast Cancer Survivorship Organization
Sisters Network Inc. : A National African American Breast Cancer Survivorship Organization
ECANA Endometrial Cancer Action Network for African-Americans
Endometrial Cancer Action Network for African-Americans | ECANA (ecanawomen.org)
For the Breast of Us Our mission is to empower women of color affected by breast cancer to make the rest of their lives the best of their lives through education, advocacy and community.
Black Women's Health Imperative BWHI is the first and only national non-profit solely dedicated to achieving health equity for Black women in America. Our vision is that all Black women will enjoy optimal health in a society that promotes health equity, social and reproductive justice.
Carrie's Touch Our mission is to humanize the black woman and her experience with breast cancer. Get Support, Resources, Services, Info, Events + Conversations for African American Breast Cancer Warriors + Advocates.
https://www.carriestouch.org/home
2for2 Boobs 2for2 Boobs, Inc. is a 501c3 Breast Cancer Awareness-2-Action and African American Survivorship Advocacy Nonprofit. 2for2Boobs is an acronym-a call to action- To take 2 minutes 2 check your 2 (self-breast checks) monthly. We are dedicated towards providing culturally relevant breast cancer education, information and resources to increase knowledge about breast health and the importance of knowing your risks, preventive measures and your family cancer history/genetic history. We also implement engaging survivorship outreach programs that empower, support and connect women/men who have had a breast cancer diagnosis by helping them advocate by giving voice to their powerful breast cancer journey ShadesPink stories that educate, encourage and inspire.
Cancer Care: Women of Color with Cancer Patient Support Group. Connect with others in our free, 15-week online support group for women of color diagnosed with cancer and going through active treatment. This group is for any woman who identifies as Black, Indigenous or Person of Color (BIPOC). In this group led by an oncology social worker, people can share their personal experiences, ways of coping and helpful resources.
https://www.cancercare.org/support_groups/204-women_of_color_with_cancer_patient_support_group
African American Breast Cancer Alliance (AABCA) Educating and supporting Black Americans in their journeys with breast cancer and survivorship.
Black Men & Prostate Cancer (Zero Cancer) Black/African American men are much more likely to get and die from prostate cancer than other men. Find more information and resources for Black men.
https://zerocancer.org/black-men
Cancer statistics for African American/Black People 2022 (Giaquinto, A et al. CA Cancer J Clin. 2022) African American/Black individuals have a disproportionate cancer burden, including the highest mortality and the lowest survival of any racial/ethnic group for most cancers. Every 3 years, the American Cancer Society estimates the number of new cancer cases and deaths for Black people in the United States and compiles the most recent data on cancer incidence (herein through 2018), mortality (through 2019), survival, screening, and risk factors using population-based data from the National Cancer Institute and the Centers for Disease Control and Prevention.
https://acsjournals.onlinelibrary.wiley.com/doi/10.3322/caac.21718
National Black Family Cancer Awareness The FDA Oncology Center of Excellence began its National Black Family Cancer Awareness initiative in 2021 coinciding with the 50th anniversary of the National Cancer Act and the signing of Presidential Executive Order 13985, with a week-long social media campaign to increase cancer awareness in one of the most vulnerable segments of the US population. This initiative, now a year-round project, aims to marshal community-based stakeholders to build knowledge surrounding cancer clinical trial participation and minority population specimen donations to national genomic databases for cancer research.
https://www.fda.gov/about-fda/project-community/national-black-family-cancer-awareness
Myeloma Link through Leukemia & Lymphoma Society Empowering Black Communities through Free Educational Outreach and Enhanced Access to Care. Black Americans have at least double the incidence of myeloma as any other race or ethnicity, and recent studies show they face additional barriers and lower access to care. As advocates for health equity, The Leukemia & Lymphoma Society (LLS) is determined to erase these disparities. We believe every patient deserves the best care and support possible. Our goal: empower Black myeloma patients, caregivers, survivors, and families by increasing their access to education on and treatments for this disease.
Pancreatic Cancer and the Black Community (Pancreatic Cancer Action Network) Black Americans are more likely to be diagnosed with pancreatic cancer than any other racial or ethnic group. There are many reasons why the incidence rate of pancreatic cancer is higher for Black Americans. We don’t know what the cause of this disparity is, but factors related to systemic racism, the environment, access to nutritious food and barriers to quality healthcare may play a role. While we continue to invest research dollars into understanding more, we can help address the disparity the Black community experiences by sharing what we do know: understanding personal and family risk, learning signs and symptoms, and advocating for yourself and your community can all make a difference.
https://pancan.org/pancreatic-cancer-and-the-black-community/
Know Your Numbers DC Charting better health outcomes for African American men. Knowing your numbers, such as key health indicators like blood pressure, blood sugar levels, cholesterol levels, and PSA level (prostate cancer), is crucial for black men, when it comes to disease prevention and management. Our mission goes beyond routine screenings; we are dedicated to empowering individuals with knowledge, fostering community engagement, and celebrating health victories. It's time to prioritize your health, and we invite you to explore the wealth of resources and support available at Know Your Numbers DC.
Sharsheret: We are the only national organization that specializes in supporting young women and families of all Jewish backgrounds who are at increased risk of developing breast cancer and ovarian cancer, and we offer culturally-relevant support to those who are newly diagnosed, in treatment, and post-treatment. Our expansive support network helps those who are facing a breast cancer or ovarian cancer diagnosis with one-on-one support as well as a peer support network. We also offer resources for financial assistance and address side effects from cancer treatments.
Sharsheret - A Jewish Breast Cancer Organization
Bikur Cholim/Partners in Health
Chai4ever
Chai Lifeline
Hadassah, Women’s Health
Network of Jewish Human Service Agencies
Nishmat: Golda Koschitzky Women’s Halachic Hotline and Online Information Center
Ritualwell (Program of Ma’ayan: The Jewish Women’s Project of the JCC in Manhattan)
The Jewish Board
www.jewishboard.org
Lemonade Fund: Emergency Financial Relief for Israeli Women Recently Diagnosed with Breast Cancer
www.lemonadefund.org
Nueva Vida: Nueva Vida’s mission is to inform, support, and empower Latino families, whose lives are affected by cancer, and to advocate for and facilitate the timely access to state of the art cancer care.
Nueva Vida – Never Give Up. (nueva-vida.org)
The Latino Cancer Institute TLCI is a nationwide community and research network dedicated to solving the issues and burden of Latino cancer.
http://latinocancerinstitute.org/
National Hispanic Medical Association Established in 1994 in Washington, D.C., the National Hispanic Medical Association (NHMA) is a non-profit association representing the interests of 50,000 licensed Hispanic physicians in the United States. The vision of the organization is to be the national leader in improving the health of Hispanic populations.
Redes En Acción The National Latino Cancer Research Network is dedicated to reducing Latino cancer with a national network of community groups, researchers, government health agencies and the public. Core activities include research, training, and stimulating awareness of cancer and resources in Latino communities.
ALAS-WINGS Latina Association for Breast Cancer Empowerment, Advocacy, and Support for Hispanic/Latina Breast Cancer Survivors. ALAS-WINGS’ mission is to advocate for and improve the lives of breast cancer survivors through education, mental health programs, and emotional support groups for Hispanic/Latina women and their families. All ALAS-Wings programs are free and conducted in Spanish.
Latinas Contra Cancer Working to create a more equitable and accessible health care system for the Latiné community around issues of cancer.
https://www.latinascontracancer.org/
Hispanic Health.info serves to provide extensive, accessible resources to members of our community in both English and Spanish. NHMA cultivates credible sources to ensure that the information we provide is accurate, reliable, and relevant.
Hispanic/Latino Health-Office of Minority Health (US Dept HHS)
https://minorityhealth.hhs.gov/hispaniclatino-health
ACSí Se Puede Hispanic/Latino Advocacy Alliance ACSí Se Puede works to reduce cancer disparities in Hispanic/Latino communities and guides ACS CAN’s initiatives and campaigns through increasing awareness, strengthening partnerships, influencing public policy priorities, diversifying messaging and materials, and recruiting and engaging volunteers that reflect the unique heritages, cultural backgrounds, and lived experiences of our diverse communities.
https://www.fightcancer.org/acs-se-puede-hispaniclatino-advocacy-alliance
Círculo de Vida- A community for Latinos with Cancer A cancer diagnosis can be devastating for anyone, but Latinos face numerous issues that too often are not addressed in traditional approaches to cancer support and care. These issues include poverty, culture and language barriers to accessing information, and lack of health insurance. The program has a 20-year history of providing a variety of support programs to Latinos living with cancer. The program also provides professional therapy individually and in a group setting to help children and teens — many already at risk due to language and socioeconomic barriers — cope with the confusion, fear and stress caused by parental illness. Therapists also offer case management for children, teens and parents, as well as conduct home and hospital visits.
https://www.circulodevida.org/
ROSAesROJO delivers health and well-being education to Hispanic women and their families in the U.S. by creating positive health communities where culturally tailored and accessible chronic disease prevention programs are at the center. We use four pillars to drive equitable whole health behavioral change: Nutrition, Mental Health, Physical Activity, and Empowered Health. ROSAesROJO dismantles income, language, and education barriers to health and well-being for Hispanic women and their families in the U.S. We are leading Hispanics to live healthier lives and reduce the incidence of chronic diseases among them. In 2022, SuperVive Comunidad launched as an app with both asynchronous and synchronous content, building a virtual community to empower Hispanic women’s health and well-being, with an intentional focus on serving economically disadvantaged women.
Hispanic Access Foundation Since our founding, Hispanic Access has worked to improve health outcomes for U.S. Latinos. By leveraging our ties with churches—trusted members of Latino communities—we are able to connect with some of the humblest and hardest-to-reach groups: the poor, the undocumented, the less educated, the uninsured, and the non-English-speaking.
https://hispanicaccess.org/what-we-do/health
Hispanic or Latino People and Cancer (CDC) Cancer is the leading cause of death for Hispanic or Latino people in the United States. Compared to members of other races and ethnicities, Hispanic and Latino people have higher rates of getting and dying from some kinds of cancer.
https://www.cdc.gov/cancer/health-equity/groups/hispanic-latino.htm
Financial toxicity in Hispanic cancer survivors: A nationally representative pancancer analysis. (Nishwant Swami et al., Financial toxicity in Hispanic cancer survivors: A nationally representative pancancer analysis.. JCO 40, 6528-6528(2022).)
https://ascopubs.org/doi/10.1200/JCO.2022.40.16_suppl.6528
Bag It Bolso de Bag It Bicultural en Español. En 20 años de proveer bolsos Bag It a personas y sus familias, hemos aprendido que las creencias, las tradiciones y los valores culturales pueden afectar en gran medida la experiencia de una persona con el diagnóstico, el tratamiento e incluso la sobrevivencia del cáncer. Bag It Cancer trabajó estrechamente con muchos latinos e hispanos que tienen cáncer o han cuidado a alguien con cáncer. Juntos creamos este bolso especial en español e inglés solo para usted.
https://bagitcancer.org/the-bag-espanol/
LatinaSHARE Servicios en Español. ¡Todos los servicios en inglés de SHARE están disponibles en español! latinashare. Consulte nuestro sitio web en español para obtener información sobre LatinaSHARE, que ofrece grupos de apoyo, programas educativos, seminarios web y una línea de ayuda, todo en español. Llame a nuestra línea de ayuda al 844-ASK-SHARE (844-275-7427), para hablar con una sobreviviente hispanohablante para obtener apoyo o información.
https://www.sharecancersupport.org/outreach/services-in-spanish/
Asian American Health Initiative Cancer Program
https://www.aahiinfo.org/english/programs/progCancerInit.php
Asian American Cancer Support Network Vision: To provide an educational, supportive, and diverse network of resources for Asian Americans affected by cancer.
The Association of Asian Pacific Community Health Organizations (AAPCHO) was formed to create a national voice to advocate for the unique and diverse health needs of Asian American (AA), Native Hawaiian, and Pacific Islander (NH/PI) communities and the community health providers that serve their needs. We promote advocacy, collaboration, and leadership to improve the health of Asian Americans, Native Hawaiians, and Pacific Islanders.
APAMSA’s National Cancer Initiative Our goal is to promote awareness of and provide screening for the common cancers that affect Asian Americans, Native Hawaiians and other Pacific Islanders. The Asian Pacific American Medical Student Association (APAMSA) is a national organization of medical and pre-medical students committed to addressing the unique health challenges of Asian American, Native Hawaiian, & Pacific Islander (AANHPI) communities.
https://www.apamsa.org/national-cancer-initiative/
Asian American Cancer Support Network provides an educational, supportive, and diverse network of resources for Asian Americans affected by cancer.
Asian and Pacific Islander American Health Forum APIAHF influences policy, mobilizes communities, and strengthens programs and organizations to improve the health of Asian Americans & Native Hawaiians/Pacific Islanders.
Asian Health Coalition Over the past 25 years, the Asian Health Coalition has been committed to eliminate health disparities among Asian, Native Hawaiian, Pacific Islander, African, and other underserved communities by utilizing a collaborative partnership approach to support the development and implementation of culturally and linguistically appropriate health equity initiatives.
Cancer & Asian Americans- Office of Minority Health (US Dept of HHS) Asian Americans generally have lower cancer rates than the non-Hispanic white population. However, disparities still exist in certain types of cancer.
https://minorityhealth.hhs.gov/cancer-and-asian-americans
What People in Asian American and Pacific Islander Communities Should Know About Their Cancer Risk: An Expert Perspective (cancer.net/ASCO)
Asian American Donor Program (AADP) is dedicated to increasing the availability of potential stem cell donors for patients with life-threatening diseases curable by a stem cell transplant. AADP is a community-based nonprofit for social benefit (501©3), and an organization specialized in conducting outreach and donor registration drives in and with diverse communities.
IHS Indian Health Service: The Federal Health Program for American Indians and Alaska Natives
Indian Health Service | Indian Health Service (IHS)
IHS Find Healthcare searchable map
Find Health Care | Indian Health Service (IHS)
IHS Patient Rights
Patients Rights & Responsibilities | for Patients (ihs.gov)
Native American Cancer Initiatives (NACI), Inc., is a small, minority (American Indian), woman-owned business with fewer than three full-time-equivalency employees. It is a for-profit company founded in 1998 (based in Colorado) to provide technical assistance to communities, patients, researchers, academicians, universities, research institutions, and professionals on Native Americans, cultural issues, program development and assessment and the full continuum of cancer (prevention through end-of-life care).
Native American Cancer Research Corp Our mission is to reduce cancer incidence and increase survival among American Indians and Alaska Natives (AI/AN)
https://natamcancer.org/NACR-Overview
National Native Network is a network of tribes, tribal organizations and health programs working to decrease commercial tobacco use and cancer health disparities among American Indians and Alaska Natives (AI/AN) across the U.S.
https://keepitsacred.itcmi.org/
American Indian Cancer Foundation At the American Indian Cancer Foundation (AICAF), we imagine a world where cancer is no longer the leading cause of death for Native people. Through hard work, culturally appropriate community-based programs, and policy change that affords Indigenous people access to the best prevention and treatment strategies, we see a day where Native communities are free of the burdens of cancer.
https://americanindiancancer.org/aicaf-project/breast-cancer-awareness/
Urban Cancer Solutions by American Indian Cancer Foundation Addressing cancer disparities found in urban Native populations. Urban Cancer Solutions by AICAF, funded by the Urban American Indian Solutions for National Breast and Cervical Cancer Early Detection Program (NBCCEDP) and National Comprehensive Cancer Control Program (NCCCP), aims to address the cancer disparities among urban American Indian and Alaska Native populations by engaging Urban Indian Health Institute, the National Council of Urban Indian Health, and Urban American Indian and Alaska Native clinics across the nation to participate. The aim is to improve cancer prevention efforts, cancer screening data and rates, and provider awareness of survivors’ unique needs and also to promote health equity.
https://www.uihi.org/projects/cancer/
Cancer & American Indians/Alaska Natives- Office of Minority Health (US Dept of HHS)
https://minorityhealth.hhs.gov/cancer-and-american-indiansalaska-natives
Indian Health Service Cancer Resources
Young Survival Coalition (YSC) strengthens the community, addresses the unique needs, amplifies the voice and improves the quality of life of young adults affected by breast cancer, locally, nationally and internationally.
Cactus Cancer Society Our mission is to provide a safe space where young adults (ages 18-45) facing cancer can connect, cope, and thrive with one another in an online community through creativity and expression. Our vision is to end isolation among young adults facing cancer. We encourage, empower, and connect a diverse and growing community of YAs around the world, 24/7. We provide a full spectrum of free, ground-breaking online wellness and support programs for young adults facing cancer, enabling them to have access to the age-appropriate psychosocial survivorship support they deserve through a medium that fits their lifestyle. All of our programs and resources are delivered either directly through our website or through Zoom and are uniquely accessible regardless of a patient’s specific diagnosis, geographic location, financial situation, or inpatient status.
Elephants and Tea Our mission is to help adolescent and young adult (AYA) patients, survivors, and caregivers know they are not alone in their experience with cancer. The Elephant in the room is cancer. Tea is the relief conversation provides. We are the only magazine written for and by the AYA cancer community telling their story in their own words.
I'm Not Done Yet Foundation helps adolescent and young adult (AYA) cancer patients and survivors live their lives the way they deserve to.
https://www.imnotdoneyetfoundation.org/
Young Adult Survivors United (YASU) YASU helps young adult cancer survivors and caregivers/co-survivors cope and thrive by providing emotional, social, and financial support; the comprehensive care model that enhances their quality of life.
F*ck Cancer is dedicated to advancing health equity through early detection and prevention programs, and by providing resources to navigate, manage, and cope with cancer. We’re here to help you on your best and worst days, and our community is always there for each other. It’s like a really, really big family, but without the embarrassing holiday photos or having to lie about liking your in-laws.
Stupid Cancer Stupid Cancer's mission is to help empower everyone affected by adolescent and young adult (AYA) cancer by ending isolation and building community. Stupid Cancer offers a lifeline to the adolescent and young adult cancer community by providing age-appropriate resources to help navigate treatment and survivorship on your own terms.
Nik's Wish Nik's Wish is driven by a core team of passionate volunteers who generously give their time, talents, and what they can afford to help enable wishes to come true. This involves administration, hospital outreach, fundraising events, and working with the young adults and their families. A good portion of the volunteers' donations cover the foundation's overhead costs, so that your support goes directly to Bringing JOY to young adults fighting cancer.Young adults, ages 18-24, have very specific concerns when they are diagnosed with cancer. This is a time in their lives when they want to meet others and form close relationships. It's a time when they want to focus on school, careers, and starting families. Instead their time is spent in treatment at children's hospitals, where they most certainly feel it's a step backwards. Cancer robs them of the cherished independence their peers enjoy. Some wishes celebrate the completion of treatment. Some are for taking a needed break from treatment to rejuvenate for the continued fight. And, some are a last wish to spend the remaining precious time with loved ones. Typically, a Nik's Wish grant will cost between $7,500 to $10,000.
Nikolas Ritschel Foundation | BRING JOY | Rockford, IL
SamFund for Young Adults Surviving and Moving Forward [SAMFund] grants serve as a financial bridge to help young adult survivors regain their financial footing after expensive cancer treatment and move forward towards their personal, professional and academic goals. More than 2,300 grants totaling more than $3.6 million dollars have been awarded to young adults as they recover from the financial impact of cancer.
SAMFund - Expect Miracles Foundation
The Young and A Survivor (YAAS!) Network For Health Equity YAAS! is a network of healthcare providers, community-based organizations, young survivors, and metastatic thrivers working together to bring resources and services to young women affected by breast cancer and their loved ones. The YAAS! Network is especially focused on young women who have limited access to resources and support because of race, color, sexual orientation and/or identity, disability, education, income, and other structural barriers. By providing education and training to healthcare providers and community-based health workers, the YAAS! Network increases awareness of the needs of young women affected by breast cancer and provides young women the support they need.
Young and A Survivor (YAAS!) - University of Illinois Cancer Center (uillinois.edu)
25 Great Scholarships for Cancer Survivors Survivors of childhood cancer overcome seemingly insurmountable obstacles in order to fight their cancer and regain their health. However, a battle with cancer often leaves a family in financial difficulties. For survivors entering college, several funds have been set up to assist families in affording a college education for their child following the diagnosis of childhood cancer. Here we list 25 college scholarships available to cancer survivors or students who have been affected by the cancer diagnosis of a family member.
25 Great Scholarships for Cancer Survivors - Top Ten Online Colleges (top10onlinecolleges.org)
Escape Our mission is to provide a sense of Escape for LGBTQIA+ Adolescent and Young Adult Cancer Patients, Survivors, and Caregivers. We are a grassroots organization learning and working to best serve adolescent and young adult (AYA) cancer patients, survivors, and caregivers. Our goal is to provide equitable resources and support to those most overlooked in cancer care. We exist to highlight the voices of lesbian, gay, bisexual, transgender, queer/questioning, intersex, asexual, plus (LGBTQIA+) folx and cultivate an environment that is safe for self expression within the cancer community
Home | Escape - LGBTQIA+ Adolescent and Young Adult Cancer Support (escapeayac.org)
The Dear Jack Foundation provides impactful programs benefiting adolescents and young adults (AYA) diagnosed with cancer and their families to improve their quality of life from treatment to survivorship. One-on-one patient support and wellness programs allow the Dear Jack Foundation to empower patients, survivors and their caregivers in their healing and to provide assurance that they are not alone in their cancer journey.
https://www.dearjackfoundation.org/programs/
13Thirty Cancer Connect is a registered 501 (c) (3) non-profit organization established in 2001 following the death of Melissa Sengbusch who was 19 years old when she died of acute myeloid leukemia. Since its beginning (first called Melissa’s Living Legacy Teen Cancer Foundation), 13thirty has become an internationally known and respected leader in the field of adolescent and young adult (AYA) cancer because of our strong passion, clear vision, and steadfast commitment to a singular focus – teens and young adults with cancer. Unlike many other cancer support organizations, we concentrate our efforts and resources on a targeted national problem that affects approximately 82,000 young people in the United States each year. As Melissa asked of her mom, we are making a difference. We are making things better for teens and young adults with cancer around the world.
MISSION Adventure Project Program The Adventure Project exists to give survivors ages 12 to 39 across the U.S. fully paid access to the fitness and wellness resources they need to get to the other side of cancer and stay there. Each survivor is on a journey — one that demands ongoing attention to training ability, overall health, injury prevention and motivation. Expensive equipment, memberships, coaching or training shouldn’t be the biggest hurdle young survivors face in their endeavors. Through Adventure Project grants, Mission is committed to providing grants for young cancer survivors and helping them overcome financial impediments to living long and well after cancer. If you are planning on training, pursuing a sport, or looking to seek nutrition advice, our cancer wellness program is here to support you and your journey. We welcome you to submit a grant application online or contact us for more information about our young survivor programs. Limited spots are available. You must apply to participate.
https://yourmission.org/adventure-project/program-description/
Adolescent & Young Adult Cancer Coalition (AYACC) Our community has worked collaboratively over the past 15 years to make progress in the AYA cancer space. Over those years several organizations have been formed to help support the crucial work that we do as clinicians, researchers, and non-profits to improve outcomes for AYAs. From the Young Adult Cancer Coalition to Critical Mass – these organizations have helped bring us together as a community. We have missed this connection and centralized support over the past few years and are thrilled to introduce the Adolescent & Young Adult Cancer Coalition. AYACC will pick up the torch, organizing the community of healthcare professionals, non-profit professionals, and advocates serving AYAs with cancer, to transform cancer care and create a better tomorrow for AYAs across the United States.
Reid R. Sacco Adolescent & Young Adult Cancer Alliance The Reid R Sacco Adolescent & Young Adult (AYA) Cancer Alliance was founded in 2005 with a focus on raising awareness about AYA cancer and its underserved patient population. As one of the earliest AYA cancer patient advocacy organizations to be established globally, the Alliance has evolved into a renowned leader in drawing attention to, and finding solutions for, a broad spectrum of gaps and unique challenges faced by AYAs diagnosed with cancer.
https://www.ayacanceralliance.org/
Ulman Foundation We change lives by creating a community of support for young adults, and their loved ones, impacted by cancer.
Wildfire Magazine & Community Bridging the gap between a breast cancer diagnosis and “who am I now?” with the power of storytelling. The only magazine FOR and BY people “too young” for breast cancer. An opportunity for everyone to find their voice and tell their personal story — whether you’ve never picked up a pen or are ready to (finally!) write your book.
Copyright © 2024 Oncology Offense - All Rights Reserved.
Powered by GoDaddy
This website uses cookies.
We use cookies to analyze website traffic and optimize your website experience. By accepting our use of cookies, your data will be aggregated with all other user data.
