My Cancer Type

• Acinic cell carcinoma – a type of salivary gland cancer
• ACTH-secreting tumor – this can be a type of pituitary tumor or pancreatic neuroendocrine tumor
• Actinic keratosis – a skin condition that sometimes leads to squamous cell skin cancer
• Acute erythroid leukemia – a subtype of acute myeloid leukemia
• Acute lymphoblastic leukemia – also known as acute lymphocytic leukemia
• Acute megakaryoblastic leukemia – a subtype of acute myeloid leukemia
• Acute monocytic leukemia – a subtype of acute myeloid leukemia
• Acute myeloblastic leukemia - a subtype of acute myeloid leukemia
• Acute myelocytic leukemia – also known as acute myeloid leukemia
• Acute myelogenous leukemia – also known as acute myeloid leukemia
• Acute myelomonocytic leukemia – a subtype of acute myeloid leukemia
• Acute non-lymphocytic leukemia – also known as acute myeloid leukemia
• Acute promyelocytic leukemia – a subtype of acute myeloid leukemia
• Adamantinoma – a type of bone cancer in young adults. See the National Cancer Institute
• Adenoid cystic carcinoma – a rare type of cancer that can start in organs such as the salivary glands, lungs, or breast
• Alveolar soft part sarcoma – a type of soft tissue sarcoma
• Ampullary cancer (carcinoma of the ampulla of Vater) – a type of cancer that starts where digestive ducts empty into the small intestine, and which is treated like pancreatic cancer
• Angiosarcoma – a type of soft tissue sarcoma, which can sometimes start in the breast
• Appendix (appendiceal) neuroendocrine (carcinoid) tumor – a type of gastrointestinal neuroendocrine tumor
• Askin tumor – a type of Ewing tumor (Ewing sarcoma)
• B-cell lymphoma – a type of non-Hodgkin lymphoma
• Barrett's disease (Barrett's esophagus) – a condition that can sometimes lead to esophagus cancer
• Bartholin gland cancer – a type of vulvar cancer
• Basaloid squamous cell carcinoma of the anus (previously known as cloacogenic carcinoma) – a type of anal cancer
• Bowen disease (squamous cell carcinoma in situ) – a very early form of squamous cell skin cancer, which can sometimes develop on the penis
• Bronchioloalveolar carcinoma (adenocarcinoma in situ) – a type of non-small cell lung cancer
• Carcinoid tumor – a type of neuroendocrine tumor (NET) that can develop in the lungs or in the gastrointestinal (digestive) tract
• Carcinoma of the ampulla of Vater – a type of cancer that starts where digestive ducts empty into the small intestine, and which is treated like pancreatic cancer
• Cardiac angiosarcoma – a type of soft tissue sarcoma that starts in blood vessels of the heart
• Castleman disease (giant lymph node hyperplasia; angiofollicular lymph node hyperplasia) – a rare condition in which there's an overgrowth of cells in the lymph nodes. See the Castleman Disease Collaborative Network or the National Institutes of Health Genetic and Rare Diseases Information Center.
• Cholangiocarcinoma – also known as bile duct cancer
• Choriocarcinoma – a type of germ cell tumor that can start in the testicles, ovaries, or brain
• Choroid plexus tumor – a rare type of brain and spinal cord tumor that most often occurs in children
• Chondrosarcoma – a type of bone cancer that starts in early forms of cartilage cells
• Chordoma – a type of bone cancer
• Chromophobe renal cell carcinoma – a type of kidney cancer
• Chronic eosinophilic leukemia – See the National Cancer Institute or National Institutes of Health Genetic and Rare Diseases Information Center
• Chronic neutrophilic leukemia – See the National Cancer Institute or National Institutes of Health Genetic and Rare Diseases Information Center
• Clear cell sarcoma – a type of soft tissue sarcoma; also a rare type of kidney cancer in children (known as clear cell sarcoma of the kidney, or CCSK)
• Craniopharyngioma – a rare type of brain tumor that can occur in adults or children
• Dermatofibrosarcoma protuberans – a type of soft tissue tumor that starts in the deep layers of the skin
• Desmoid tumor (also known as fibromatosis) – a type of intermediate soft tissue tumor
• Desmoplastic small round cell tumor – a type of soft tissue sarcoma
• Dysgerminoma – a type of germ cell tumor that starts in the ovaries
• Embryonal carcinoma – a type of testicular cancer
• Endodermal sinus tumor (yolk sac tumor) – a type of germ cell tumor that most often starts in the testicles or ovaries
• Endometrial stromal sarcoma – a type of uterine sarcoma
• Ependymoma – a type of brain and spinal cord tumor that can occur in adults or children
• Epithelial appendix (appendiceal) cancer – See the National Cancer Institute
• Epithelial-myoepithelial carcinoma – a type of salivary gland cancer
• Epithelioid hemangioendothelioma (EHE) – a rare type of soft tissue sarcoma; see the National Cancer Institute
• Epithelioid sarcoma – a type of soft tissue sarcoma
• Essential thrombocythemia – a condition in which the body makes too many blood platelets; see the National Cancer Institute or National Institutes of Health Genetic and Rare Diseases Information Center
• Esthesioneuroblastoma (olfactory neuroblastoma) – a type of nasal cavity and paranasal sinus cancer
• Extra-cranial malignant rhabdoid tumor (MRT) – a type of soft tissue sarcoma; see the National Cancer Institute
• Extranodal NK/T-cell lymphoma, nasal type – a type of lymphoma of the skin

• Fallopian tube cancer – see ovarian cancer
• Fibrolamellar carcinoma – a type of liver cancer
• Fibromatosis – a condition in which a person hasone or more soft tissue tumors called fibromas
• Fibromyxoid sarcoma (Evans’ tumor) – a type of soft tissue sarcoma
• Fibrosarcoma – a type of soft tissue sarcoma or bone cancer
• Folliculotropic mycosis fungoides – a type of lymphoma of the skin
• Ganglioglioma – a type of brain tumor that can occur in adults or children
• Ganglioneuroblastoma – a type of tumor related to neuroblastoma
• Gastric Adenocarcinoma and Proximal Polyposis of the Stomach (GAPPS) - an inherited condition that increases the risk of stomach cancer
• Gastrinoma – a type of pancreatic neuroendocrine tumor
• Gastroesophageal junction (GEJ) cancer – a cancer that occurs where the esophagus meets the stomach; see esophagus cancer
• Gestational trophoblastic disease (GTD) (hydatidiform mole; gestational trophoblastic neoplasia) – Seen the National Cancer Institute or National Institutes of Health Genetic and Rare Diseases Information Center
• Germ cell tumor – a type of childhood tumor that occurs most often in the testicles or ovaries, but can also occur in other parts of the body such as the brain
• Giant cell tumor of bone – a type of bone cancer
• Glucagonoma – a type of pancreatic neuroendocrine tumor
• Granulomatous slack skin – a skin condition often linked with lymphoma of the skin
• Hairy cell leukemia – a type of white blood cell cancer that is similar to chronic lymphocytic leukemia
• Heart cancer (cardiac angiosarcoma) – a soft tissue sarcoma  that starts in the muscle or blood vessels of the heart
• Hemangioendothelioma – a type of soft tissue sarcoma
• Hemangiosarcoma – a type of soft tissue sarcoma
• Hepatobiliary cancer – see bile duct cancer, liver cancer, or gallbladder cancer
• Hepatoblastoma – a type of childhood liver cancer
• Hepatocellular carcinoma – the most common type of liver cancer
• Hepatoma – another name for hepatocellular carcinoma, the most commmon type of liver cancer
• Hereditary diffuse gastric cancer (HDGC) – an inherited syndrome that increases a person's risk of stomach cancer
• Hurthle cell cancer (oxyphil cell carcinoma) – a type of thyroid cancer
• Insulinoma – a type of pancreatic neuroendocrine tumor
• Islet cell tumor – another name for pancreatic neuroendocrine tumor
• Keratoacanthoma – a type of skin tumor; see basal and squamous cell cancer
• Klatskin tumor (also called perihilar or hilar tumor) – a type of bile duct cancer (cholangiocarcinoma)
• Large cell neuroendocrine carcinoma (LCNEC) – a type of lung cancer
• Large granular lymphocyte (LGL) leukemia – a type of white blood cell cancer related to chronic lymphocytic leukemia
• Leiomyosarcoma – a type of soft tissue sarcoma that starts in smooth muscle cells, often in the uterus
• Leydig cell tumor – a type of testicular cancer
• Lip cancer – a type of oral cavity and oropharyngeal cancer
• Liposarcoma – a type of soft tissue sarcoma
• Lymphomatoid papulosis – a skin condition related to lymphoma of the skin
• Lymphoplasmacytic lymphoma – also known as Waldenstrom macroglobulinemia

• Malignant mesenchymoma – a type of soft tissue sarcoma
• Malignant mixed mullerian tumor (also known as malignant mixed mesodermal tumor or uterine carcinosarcoma) – a type of endometrial cancer
• Malignant peripheral nerve sheath tumor (MPNST) – a type of soft tissue sarcoma
• Malignant rhabdoid tumor of the kidney – a rare type of kidney cancer seen most often in children; see Wilms tumor
• Medulloepithelioma – a rare type of eye cancer in children; see retinoblastoma
• Meningioma – a type of brain or spinal cord tumor that can occur in adults or children
• Mesoblastic nephroma – a rare type of childhood kidney cancer; see Wilms tumor
• Metaplastic cancer of the breast – see the National Institutes of Health Genetic and Rare Diseases Information Center
• Monoclonal gammopathy of undetermined significance (MGUS) – a condition that sometimes leads to multiple myeloma or lymphoma
• Mouth cancer – see oral cavity & oropharyngeal cancer or salivary gland cancer
• Mucinous cystic neoplasm – a rare type of pancreatic tumor; see pancreatic cancer
• Mucoepidermoid carcinoma – a type of salivary gland cancer
• Muscle cancer (myosarcoma) – cancer that starts in muscle cells; see rhabdomyosarcoma, soft tissue sarcoma, or uterine sarcoma
• Myoepithelial carcinoma – a rare type of cancer that most often occurs in the salivary glands
• Mycosis fungoides – a type of lymphoma of the skin
• Myelofibrosis – a condition in which scar tissue (fibrosis) forms in the bone marrow; see the National Cancer Institute or National Institutes of Health Genetic and Rare Diseases Information Center
• Myxofibrosarcoma – a type of soft tissue sarcoma
• Nephroblastoma – another name for Wilms tumor
• Neuroendocrine carcinoma of the skin – another name for Merkel cell skin cancer
• NUT carcinoma – See the National Cancer Institute
• Oat cell cancer – another name for small cell lung cancer, a type of lung cancer
• Occult primary cancer – another name for cancer of unknown primary
• Ocular or intraocular melanoma (also uveal, conjunctival, orbital, adnexal) – a type of eye cancer
• Olfactory neuroblastoma (esthesioneuroblastoma) – a type of nasal cavity and paranasal sinus cancer
• Oligodendroglioma – a type of brain or spinal cord tumor that can occur in adults or children
• Oncocytic carcinoma – a rare type of cancer that can start in different organs, including the salivary glands
• Ovarian small cell cancer – See the National Cancer Institute or National Institutes of Health Genetic and Rare Diseases Information Center
• Paget disease – a term used to describe a type of breast cancer (Paget disease of the breast), as well as other conditions related to anal cancer and vulvar cancer. (These are different from Paget disease of bone, which is related to osteosarcoma and other bone cancers.)
• Pagetoid reticulosis – a rare type of lymphoma of the skin
• Paraganglioma (extra-adrenal pheochromocytoma) – a rare type of nerve tumor; see the National Cancer Institute or the National Institutes of Health Genetic and Rare Diseases Information Center
• Parathyroid cancer – a rare type of cancer that starts in the parathyroid glands; see thyroid cancer or the National Cancer Institute
• Periosteal osteosarcoma – a type of osteosarcoma
• Peripheral primitive neuroectodermal tumor (PPNET) – a type of Ewing tumor
• Pheochromocytoma – a type of adrenal gland tumor; see adrenal cancer
• Phyllodes tumor – a type of breast tumor
• Pineoblastoma – a type of brain and spinal cord tumor in children
• Plasmacytoma – see multiple myeloma
• Polycythemia vera – see the National Cancer Institute or National Institutes of Health Genetic and Rare Diseases Information Center
• Polymorphous low-grade adenocarcinoma – a type of salivary cancer
• Primary cutaneous lymphoma (many types) – another name for lymphoma of the skin
• Primary peritoneal carcinoma – see ovarian cancer
• Prolactinoma (lactotroph adenoma) – a type of pituitary tumor
• Prolymphocytic leukemia – a type of leukemia related to chronic lymphocytic leukemia

• Renal cell carcinoma – a type of kidney cancer
• Sarcomatoid carcinoma (carcinosarcoma) – a rare type of cancer that can occur in different parts of the body, including the lungs
• Schwannoma – a type of tumor that starts in Schwann cells that surround and insulate nerves. These tumors can start near the brain and spinal cord in adults or children, or in other parts of the body.
• Sclerosing epithelioid fibrosarcoma – see the National Cancer Institute
• Sebaceous carcinoma - see the American Academy of Dermatology
• Seminoma – a type of germ cell tumor that most often starts in the testicles
• Sertoli cell tumor – a type of testicular cancer
• Sezary syndrome – a type of lymphoma of the skin
• Sinus cancer – see nasal cavity and paranasal sinus cancer
• Skin adnexal tumors – a group of tumors that start in structures in the skin such as hair follicles or sweat glands; see basal and squamous cell cancer
• Solid pseudopapillary neoplasm – a type of slow-growing tumor in the pancreas; see pancreatic cancer
• Solitary fibrous tumor – a type of soft tissue tumor; see soft tissue sarcoma
• Solitary plasmacytoma – see multiple myeloma
• Somatostatinoma – a type of pancreatic neuroendocrine tumor
• Spermatocytic seminoma – a type of testicular cancer
• Spindle cell neoplasm, spindle cell tumor, spindle cell carcinoma, spindle cell sarcoma – a type of tumor made up of cells shaped like spindles. These tumors can be either benign (not cancerous) or malignant (cancerous). A spindle cell tumor might be seen in:
  • Soft tissue sarcoma
  • Breast cancer
  • Breast cancer in men
  • Thymus cancer
  • Rhabdomyosarcoma
  • Kidney cancer
• Subcutaneous panniculitis-like T-cell lymphoma – a type of lymphoma of the skin
• Synovial sarcoma – a type of soft tissue sarcoma
• T-cell lymphoma – a type of non-Hodgkin lymphoma, which can sometimes start in the skin
• Teratoma – a type of germ cell tumor that most often starts in the ovaries or testicles
• Throat cancer – cancer that starts in the upper part of the throat (see nasopharyngeal cancer); middle part of the throat (see oral cavity & oropharyngeal cancer), or voice box or lower part of the throat (see laryngeal & hypopharyngeal cancer)
• Thymoma – a type of tumor that starts in the thymus; see thymus cancer
• Tongue cancer – see oral cavity & oropharyngeal cancer
• Tonsil cancer – see oral cavity & oropharyngeal cancer
• Trabecular cancer – another name for Merkel cell cancer
• Translocation renal cell carcinoma – a rare type of kidney cancer; see the National Cancer Institute
• Transitional cell carcinoma (urothelial carcinoma) – a type of cancer that can start in the bladder, kidney, or other parts of the urinary tract
• Undifferentiated pleomorphic sarcoma (formerly malignant fibrous histiocytoma) – a type of soft tissue sarcoma or bone cancer
• Urachal cancer – a rare type of bladder cancer; see the National Institutes of Health Genetic and Rare Diseases Information Center
• Urethral cancer – cancer that starts in the tube leading out of the bladder
• Urothelial carcinoma (transitional cell carcinoma) – a type of cancer that can start in the bladder, kidney, or other parts of the urinary tract
• Uterine cancer – see endometrial cancer or uterine sarcoma
• Verrucous carcinoma – a rare type of cancer that starts most often in the mouth, but can also start on the vulva, penis, or other parts of the body
• VIPoma – a type of neuroendocrine tumor that most often starts in the pancreas
• Vocal cord/voice box cancer – see laryngeal and hypopharyngeal cancer
• Womb cancer – see endometrial cancer or uterine sarcoma
• Yolk sac tumor (endodermal sinus tumor, infantile embryonal cancer) – a type of germ cell tumor that most often starts in the ovaries or testicles
• Renal cell carcinoma – a type of kidney cancer
• Sarcomatoid carcinoma (carcinosarcoma) – a rare type of cancer that can occur in different parts of the body, including the lungs
• Schwannoma – a type of tumor that starts in Schwann cells that surround and insulate nerves. These tumors can start near the brain and spinal cord in adults or children, or in other parts of the body.
• Sclerosing epithelioid fibrosarcoma – see the National Cancer Institute
• Sebaceous carcinoma - see the American Academy of Dermatology
• Seminoma – a type of germ cell tumor that most often starts in the testicles
• Sertoli cell tumor – a type of testicular cancer
• Sezary syndrome – a type of lymphoma of the skin
• Sinus cancer – see nasal cavity and paranasal sinus cancer
• Skin adnexal tumors – a group of tumors that start in structures in the skin such as hair follicles or sweat glands; see basal and squamous cell cancer
• Solid pseudopapillary neoplasm – a type of slow-growing tumor in the pancreas; see pancreatic cancer
• Solitary fibrous tumor – a type of soft tissue tumor; see soft tissue sarcoma
• Solitary plasmacytoma – see multiple myeloma
• Somatostatinoma – a type of pancreatic neuroendocrine tumor
• Spermatocytic seminoma – a type of testicular cancer
• Subcutaneous panniculitis-like T-cell lymphoma – a type of lymphoma of the skin
• Synovial sarcoma – a type of soft tissue sarcoma
• T-cell lymphoma – a type of non-Hodgkin lymphoma, which can sometimes start in the skin
• Teratoma – a type of germ cell tumor that most often starts in the ovaries or testicles
• Throat cancer – cancer that starts in the upper part of the throat (see nasopharyngeal cancer); middle part of the throat (see oral cavity & oropharyngeal cancer), or voice box or lower part of the throat (see laryngeal & hypopharyngeal cancer)
• Thymoma – a type of tumor that starts in the thymus; see thymus cancer
• Tongue cancer – see oral cavity & oropharyngeal cancer
• Tonsil cancer – see oral cavity & oropharyngeal cancer
• Trabecular cancer – another name for Merkel cell cancer
• Translocation renal cell carcinoma – a rare type of kidney cancer; see the National Cancer Institute
• Transitional cell carcinoma (urothelial carcinoma) – a type of cancer that can start in the bladder, kidney, or other parts of the urinary tract
• Undifferentiated pleomorphic sarcoma (formerly malignant fibrous histiocytoma) – a type of soft tissue sarcoma or bone cancer
• Urachal cancer – a rare type of bladder cancer; see the National Institutes of Health Genetic and Rare Diseases Information Center
• Urethral cancer – cancer that starts in the tube leading out of the bladder
• Urothelial carcinoma (transitional cell carcinoma) – a type of cancer that can start in the bladder, kidney, or other parts of the urinary tract
• Uterine cancer – see endometrial cancer or uterine sarcoma
• Verrucous carcinoma – a rare type of cancer that starts most often in the mouth, but can also start on the vulva, penis, or other parts of the body
• VIPoma – a type of neuroendocrine tumor that most often starts in the pancreas
• Vocal cord/voice box cancer – see laryngeal and hypopharyngeal cancer
• Womb cancer – see endometrial cancer or uterine sarcoma
• Yolk sac tumor (endodermal sinus tumor, infantile embryonal cancer) – a type of germ cell tumor that most often starts in the ovaries or testicles

NCI: Cancer Types A to Z

A to Z List of Cancer Types - NCI 

National Foundation for Cancer Research: Cancer Types

Cancer Types | National Foundation for Cancer Research (nfcr.org) 

American Cancer Society: Find Your Cancer Type

Cancer Types | Find Your Cancer Type | American Cancer Society 

Find the NCCN Guidelines for Your Cancer

https://www.nccn.org/patientresources/patient-resources/guidelines-for-patients

UpToDate by Wolters Kluwer: Cancer Basics (by cancer type)

https://www.uptodate.com/contents/table-of-contents/patient-education/cancer

UpToDate by Wolters Kluwer: Cancer Beyond the Basics (by cancer type)

https://www.uptodate.com/contents/table-of-contents/patient-education/cancer

Cancer treatment and survivorship statistics, 2022 (Miller, K. et al., CA: A Cancer Journal for Clinicians, 23 June 2022. https://doi.org/10.3322/caac.21731) 

https://acsjournals.onlinelibrary.wiley.com/doi/10.3322/caac.21731

NCI: What is Bladder Cancer?

What Is Bladder Cancer? - NCI 

OncoLink: Bladder Cancer Basics

Bladder Cancer: The Basics | OncoLink 

Urology Care Foundation

Home - Urology Care Foundation (urologyhealth.org) 

BCAN Bladder Cancer Advocacy Network

Bladder Cancer Advocacy Network (bcan.org) 

American Bladder Cancer Society

American Bladder Cancer Society (bladdercancersupport.org) 

World Bladder Cancer Patient Coalition

Home - World Bladder Cancer Patient Coalition 

NCI: Bone Cancer

Bone Cancer—Patient Version - NCI 

NCI: Soft Tissue Sarcoma

Soft Tissue Sarcoma—Patient Version - NCI (cancer.gov) 

NFCR: Sarcoma

Cancer Types | Sarcoma - National Foundation for Cancer Research (nfcr.org) 

Sarcoma Alliance

Sarcoma Alliance | Support for your journey with sarcoma 

Sarcoma Coalition

Home - Sarcomacoalition.us 

The Paula Takacs Foundation for Sarcoma Research

Paula Takacs Foundation For Sarcoma Research 

Sarcoma Foundation of America

Patient Resources- What is Sarcoma? Treatments & More. (curesarcoma.org) 

Rein in Sarcoma

Home - Rein in Sarcoma 

The Bone Marrow & Cancer Foundation supports patients, their families and caregivers every step of the way during a cancer diagnosis or bone marrow, Hematopoietic Cell Transplantation (HCT) or cord blood transplant. No patient should ever feel alone. The Bone Marrow & Cancer Foundation, founded in 1992, is dedicated to improving the quality of life for cancer and transplant patients and their families by providing vital financial assistance, comprehensive resources, educational information, physician referrals, and emotional support programs.

Financial Assistance for Cancer Patients - Financial Help - Home (bonemarrow.org) 

Blood & Marrow Transplant Information Network 

BMT Infonet | 

Focused Ultrasound Therapy for Bone Metastases (FUS)

Bone Metastases  - Focused Ultrasound Foundation (fusfoundation.org) 

Myelodysplastic Syndromes (American Cancer Society) Myelodysplastic syndromes (MDS) are conditions that can occur when the blood-forming cells in the bone marrow become abnormal. This leads to low numbers of one or more types of blood cells. MDS is considered a type of cancer.

https://www.cancer.org/cancer/types/myelodysplastic-syndrome.html

Institute for Myeloma & Bone Cancer Research (IMBCR)

https://imbcr.org/

Myeloma Link through Leukemia & Lymphoma Society Empowering Black Communities through Free Educational Outreach and Enhanced Access to Care. Black Americans have at least double the incidence of myeloma as any other race or ethnicity, and recent studies show they face additional barriers and lower access to care. As advocates for health equity, The Leukemia & Lymphoma Society (LLS) is determined to erase these disparities. We believe every patient deserves the best care and support possible. Our goal: empower Black myeloma patients, caregivers, survivors, and families by increasing their access to education on and treatments for this disease.

https://lls.org/myeloma-link

Blood & Marrow Transplant Information Network (BMT InfoNet) is a leading advocacy organization for transplant and CAR T-cell therapy recipients before, during and after treatment. Founded in 1990, BMT InfoNet has pioneered a vast array of services to help transplant patients make critical decisions throughout their transplant journey. BMT InfoNet helps patients and their loved ones navigate the transplant experience with programs that provide the "human touch". One-on-One Peer Support:  BMT InfoNet's Caring Connections program links patients who are new to the world of transplantation with trained transplant survivors who can listen to their concerns and offer insights on navigating the transplant experience. This one-on-one peer support is also available to family members of transplant patients. Personal Guidance:  BMT InfoNet's staff can be reached by phone (888-597-7674 or 847-433-3313) or email (help@bmtinfonet.org) and can help patients and caregivers think through questions and concerns they have about transplant.

https://bmtinfonet.org/

National Bone Marrow Transplant Link (nbmtLINK)  Established in 1992, the National Bone Marrow Transplant Link is a 501(c)(3) nonprofit organization dedicated to serving individuals before, during, and after a bone marrow or stem cell transplant. Myra Jacobs founded the nbmtLINK in response to the plight of a woman, Sandy, living in her area. The mission of the National Bone Marrow Transplant Link is to help patients, caregivers, and families cope with the social and emotional challenges of bone marrow/stem cell transplant from diagnosis through survivorship by providing vital information and personalized support services.

https://www.nbmtlink.org/

EHE Foundation We envision a world where Epithelioid Hemangioendothelioma (EHE) is easily diagnosed and treatable. Our mission is to find treatments and a cure for the rare cancer, Epithelioid Hemangioendothelioma (EHE), by advancing research and driving collaboration between patients, researchers, and clinicians. The EHE Foundation, founded in 2015, is a nonprofit 501c3 organization dedicated to pursuing effective treatment for Epithelioid Hemangioendothelioma (EHE) and supporting EHE patients and their families. 

https://fightehe.org/

Susan G. Komen

Breast Cancer Foundation | Susan G. Komen® 

Breast Pathology (American Cancer Society)

Breast Pathology | Understanding Your Pathology Report | American Cancer Society 

Contents of a Breast Cancer Pathology Report (Susan G. Komen)

Contents of a Breast Cancer Pathology Report | Susan G. Komen® 

NCI: Breast Cancer

Breast Cancer—Patient Version - NCI 

BreastCancer.org

Breastcancer.org - Breast Cancer Information and Support 

HIS Breast Cancer Our mission is to increase awareness and hence the early detection for all men and to help those who are at high risk due to genetics and other risk factors to gain access to regular screenings. Through our efforts we hope to increase all studies and trials to include men for Diagnostics, Hormonal, Immunotherapy and Genetics, gaining a true understanding of how this disease progresses in men, how it conflicts with that of a woman, and the best course of treatment.

https://www.hisbreastcancer.org/

Living Beyond Breast Cancer

Breast cancer resources, real stories, and support you need | LBBC 

National Breast Cancer Foundation, Inc.

Breast Cancer Information, Support & Donations - National Breast Cancer Foundation 

Project Life: A membership based virtual wellness house for those living with Metastatic Breast Cancer and their loved ones. 

Home | Project Life MBC 

Endocrine Society

Patient Engagement | Endocrine Society 

Sharsheret- A Jewish Breast Cancer Organization

Sharsheret - A Jewish Breast Cancer Organization 

The Chrysalis Initiative exists to disrupt outcome  disparities within breast cancer, so every patient receives the care they deserve.  By providing patients with mentoring and resource navigation and equipping Black women (and other disparate groups) with the opportunity and education to assess their breast cancer risk, we are closing the gap one story at a time.

In addition to supporting patients with breast cancer, The Chrysalis Cancer Curriculum Provider Training challenges institutional realities with evidence-based strategies to guide providers as they reshape their paradigms and improve their practices to eradicate treatment disparities.

https://thechrysalisinitiative.org/

Breast Cancer Research Foundation

Breast Cancer Research Foundation | BCRF 

Young Survival Coalition: Young Adults Facing Breast Cancer Together

Young Adults Facing Breast Cancer Together | Young Survival Coalition | Home 

Triple Negative Breast Cancer Foundation

Home | Triple Negative Breast Cancer Foundation (tnbcfoundation.org) 

African American Breast Cancer Alliance

AABCA - African American Breast Cancer Alliance (aabcainc.org) 

For the Breast of Us Our mission is to empower women of color affected by breast cancer to make the rest of their lives the best of their lives through education, advocacy and community.

For the Breast of Us 

The Donna Foundation: Our mission is to provide financial assistance and support to those living with breast cancer and fund ground breaking breast cancer research. 

The DONNA Foundation - Caring for those with Breast Cancer | The DONNA Foundation 

The Pink Fund: Breast Cancer Financial Assistance

Pink Fund - Donate Now: Breast Cancer Financial Assistance 

National Breast Cancer Coalition

Breast Cancer Advocacy | National Breast Cancer Coalition (stopbreastcancer.org) 

METAvivor: Metastatic Breast Cancer Awareness, Research, and Support

METAvivor - Metastatic Breast Cancer Awareness, Research and Support | METAvivor 

Metastatic Breast Cancer Network

Metastatic Breast Cancer Network: a national, independent, patient-led, non-profit, advocacy group (mbcnetwork.org) 

The Gift of Hope Breast Cancer Foundation (Florida) The Gift of Hope believes that no woman should have to worry about how their bills will be paid. They should only concentrate on getting well.

The Gift of Hope Breast Cancer Foundation | We provide financial support to low-income women with breast cancer (forthegiftofhope.org) 

Social Isolation and Breast Cancer (Journal of Endocrinology, 2023)

Social Isolation and Breast Cancer | Endocrinology | Oxford Academic (oup.com) 

Progesterone Receptor Gene Polymorphisms and Breast Cancer Risk (Journal of Endocrinology, 2023)

Progesterone Receptor Gene Polymorphisms and Breast Cancer Risk | Endocrinology | Oxford Academic (oup.com) 

Bright Pink Our mission is to accelerate, deepen, and expand the impact of life-saving breast and ovarian health interventions.

Bright Pink 

2for2 Boobs  2for2 Boobs, Inc. is a 501c3 Breast Cancer Awareness-2-Action and African American Survivorship Advocacy Nonprofit. 2for2Boobs is an acronym-a call to action- To take 2 minutes 2 check your 2 (self-breast checks) monthly. We are dedicated towards providing culturally relevant breast cancer education, information and resources to increase knowledge about breast health and the importance of knowing your risks, preventive measures and your family cancer history/genetic history. We also implement engaging survivorship outreach programs that empower, support and connect women/men who have had a breast cancer diagnosis by helping them advocate by giving voice to their powerful breast cancer journey ShadesPink stories that educate, encourage and inspire.

https://2for2boobs.org/

Side-Out Foundation In volleyball, “side-out” means regaining control of the ball. Similarly, The Side-Out Foundation helps people with breast cancer regain control of their lives. After my mother Gloria was diagnosed with stage IV breast cancer, we started the Side-Out Foundation in 2006 to challenge today’s cancer care. We believed if we could extend the lives of those living with the most advanced stage of breast cancer, we could really make a difference for everyone living with breast cancer. We decided to focus on more than just awareness and fundraising; we decided to go ten steps further. My father Bryant hired scientists and formed research teams so we could own, manage, and operate science that actively searches for answers and treatment options for those living with metastatic breast cancer. We don’t just fund research, we do research. Gloria wanted us to impact breast cancer in the most hands-on way possible. She wanted us to stay focused on action. Thanks to Side-Out Foundation supporters and researchers, we’re staying true to that mission.

https://side-out.org/

After Breast Cancer Diagnosis (ABCD): ABCD provides customized, one-to-one emotional support to anyone impacted by a breast cancer diagnosis.

Home - After Breast Cancer Diagnosis (abcdbreastcancersupport.org) 

The WISDOM Study: We are a partnership of breast health doctors and researchers, patient advocates, community leaders and women from all neighborhoods who share a common goal: to revolutionize the way breast cancer is detected and risk is reduced.

The WISDOM Study - Join The Movement 

Inflammatory Breast Cancer Research Foundation

IBC Research Foundation – Inflammatory Breast Cancer Research Foundation 

Reach to Recovery (American Cancer Society) The American Cancer Society Reach To Recovery® is a free program that connects people facing breast cancer - from diagnosis through survivorship - with trained volunteers who are breast cancer survivors. Our volunteers provide one-on-one support to help those facing breast cancer cope with diagnosis, treatment, side effects, talking with friends and family, and more. Volunteers do not provide medical advice. 

https://reach.cancer.org/p/p1 

Unite for Her is a 501(c)3 national nonprofit organization that supports breast cancer and ovarian cancer patients by providing integrative therapies, services, education, resources, and support at no personal cost. We are committed to being a safe space for people of all sexual orientations/gender identities. Through the Unite for HER Wellness Passport Program, you will receive up to $2,000 worth of integrative therapies and services free, without any cost to you. This will allow you to create a personal care plan that speaks to you personally, helping you mitigate unwanted side effects and symptoms. These therapies and treatments, scientifically and research based, are proven to help support empower and restore you physically as well as emotionally, at a time when you are in much need.

https://uniteforher.org/

ABC Global Alliance Advanced breast cancer knows no boundaries, affecting individuals from diverse backgrounds, all over the world. At ABC Global Alliance, we celebrate the richness of diversity, fostering an inclusive environment where people from different countries and backgrounds can come together, collaborate, and share knowledge and resources to improve the lives of ABC patients worldwide.

https://www.abcglobalalliance.org/

TurningPoint Breast Cancer Rehabilitation TurningPoint was created to address a gap in breast cancer rehabilitation services for both the physical and emotional aspects of recovery. It’s our mission to improve survivors’ quality of life, advocate for evidence-based rehabilitation and minimize various barriers to care. This means that TurningPoint can provide services regardless of a patient’s ability to pay. We’re deeply passionate about helping all breast cancer survivors thrive and get back to doing the things they enjoy. TurningPoint Breast Cancer Rehabilitation is a non-profit, 501(c) (3) organization created to meet these needs and improve the quality of life for patients with breast cancer through specialized and evidence-based rehabilitation, including physical and massage therapy, nutritional counseling, lymphedema screening and management, emotional support and tailored fitness classes. TurningPoint also offers a wide variety of educational programs on topics related to breast cancer survivorship for patients, caregivers and healthcare providers. Since opening our doors in 2003, we have served thousands of women and men going through breast cancer. In-person and virtual services offered to patients in Georgia. 

https://myturningpoint.org/

Gloria Gemma Breast Cancer Foundation We are a 501(c)(3) non-profit organization dedicated to providing free services to individuals and families touched by breast cancer in our local communities of Rhode Island, southeastern Massachusetts and eastern Connecticut. We understand the emotions and confusion that occur when you or a loved one is diagnosed with cancer. It can be one of the most stressful and psychologically draining experiences of a person's life. Gloria Gemma is here to provide access to the support and resources you need. Whether you are newly diagnosed, a survivor or you’ve lost a loved one to cancer, our staff and volunteers are here to guide you through your cancer journey with compassion and understanding. We offer a family atmosphere where hugs are plentiful and emotions are never judged, and we are committed to helping you restore your mind, body, and spirit through free holistic programs, education, and support.

https://www.gloriagemma.org/

Libby's Legacy Breast Cancer Foundation The Mission of Libby’s Legacy Breast Cancer Foundation is to provide comprehensive services to the underserved through education, mammograms, and follow-up diagnostics on the journey from diagnosis to survivorship with the compassion to ensure no one fights alone. Libby’s Legacy also helps stage IV breast cancer patients battling this disease by granting wishes in order to create cherished memories with loved ones through the LIVE BIG program.

https://libbyslegacy.org/

MyBCTeam Connect with over 50,000 members who are living with Breast Cancer. MyBCTeam is the social network for women facing breast cancer. Get the emotional support you need from others like you, and gain practical advice and insights on managing treatment or therapies for breast cancer. MyBCTeam is the only social network where you can truly connect, make real friendships, and share daily ups and downs in a judgment-free place.

https://www.mybcteam.com/

BezzyBC Bezzy members are excited to meet you, share advice and stories about their experiences living with breast cancer. Join a judgment-free space with a free profile. Bezzy BC is a space for peer support, feel-good stories, and advice. Take a look around and introduce yourself to the Bezzy community. The mission of Bezzy’s Breast Cancer community is to empower those who are living with Breast Cancer to live beyond their diagnosis through compassion, support and knowledge. We work to offer a safe place for our community members to give and receive advice though one-to-one messaging and group discussions, all while offering access to the latest news and research updates. We strive to foster a sense of community through first-person stories and interviews that help members’ feel they are not alone in their journeys.

https://www.bezzybc.com/

NCI: Colorectal Cancer

Colorectal Cancer—Patient Version - NCI 

NCI: Anal Cancer

Anal Cancer—Patient Version - NCI 

NCI: Gastrointestinal Stromal Tumors/Soft Tissue Sarcoma

Soft Tissue Sarcoma—Patient Version - NCI (cancer.gov) 

NCI: Gastrointestinal Neuroendocrine Tumors

Gastrointestinal Neuroendocrine Tumors—Patient Version - NCI (cancer.gov) 

NCI: Stomach/Gastric Cancer

What Is Stomach Cancer? - NCI 

Colon and Rectal Pathology (American Cancer Society)

Colon and Rectal Pathology | Understanding Your Pathology Report | American Cancer Society 

COLONTOWN is an online community of more than 120 “secret” groups on Facebook for colorectal cancer patients, survivors, and care partners. If you or your loved one is facing a colon cancer or rectal cancer diagnosis, you can join groups (we call them “neighborhoods”) based on your stage of disease, specific types of treatment, and special interests – such as colorectal cancer clinical trials, young-onset colorectal cancer patients, and local support groups. Every neighborhood is led by Neighborhood Hosts, themselves living the experience. In addition to our online Facebook community, COLONTOWN offers free educational resources designed for colorectal cancer patients and care partners through Colontown University.

Home - COLONTOWN 

Colontown University: Colorectal cancer education for patients and caregivers, by patients and caregivers.

Home - Colontown University 

Fight Colorectal Cancer

Fight Colorectal Cancer | Relentless Champions of Hope 

Colorectal Cancer Alliance

Colorectal Cancer Alliance | Prevention, Research, Patient Support | Colorectal Cancer Alliance (ccalliance.org) 

GI Cancers Alliance

GI Cancers Alliance – Fight against gastrointestinal cancers 

Colon Cancer Coalition

Colon Cancer Coalition – The Colon Cancer Coalition is a non-profit that oversees the continued success of “Get Your Rear In Gear” events across the United States. 

Debbie's Dream Foundation: Curing Stomach Cancer

Stomach Cancer Foundation | Debbie's Dream Foundation (debbiesdream.org) 

EC Aware Esophageal Cancer Awareness 

Esophageal Cancer Awareness - EC Aware 

Esophageal Cancer Education Foundation

ECEF - Esophageal Cancer Education Foundation (fightec.org) 

GIST Support International (GSI) is an all-volunteer, non-profit organization that reaches out to GIST patients and their families and friends to provide education and support. GSI promotes and encourages ongoing research in the quest for a cure for Gastrointestinal Stromal Tumor.

GIST Support International 

Fibrolamellar Cancer Foundation The principal purpose of the Foundation is to encourage, drive and fund research that will substantially improve outcomes for fibrolamellar patients. We envision a world where all people with fibrolamellar carcinoma will be diagnosed early, treated effectively and hopefully cured.

https://fibrofoundation.org/

The Life Raft Group Our mission is to enhance survival and quality of life for people living with GIST through patient-powered research, education and empowerment, and global advocacy efforts. The LRG vision is to champion patient-powered science and drastically increase long-term survivorship for all cancer patients. 

https://liferaftgroup.org/

Hope for Stomach Cancer- Gastric Cancer Patient Advocacy Movement Hope For Stomach Cancer is a 501(c)(3) non-profit organization that provides resources to patients, caregivers and loved ones while promoting early detection and prevention to the general and medical communities. Hope creates and facilitates programs that enable those affected by stomach cancer to take actionable steps to live the best possible life through each phase of the disease. Through research, early detection and prevention we serve the stomach cancer community, helping to save lives and working to find a cure.

Hope For Stomach Cancer - Gastric Cancer Patient Advocacy Movement (stocan.org) 

Know Your Biomarker from the Global Colon Cancer Association Know Your Biomarker is an awareness, education, and advocacy campaign offering patient educational materials about colorectal cancer biomarkers and advocacy tools to promote global access to testing.

https://www.knowyourbiomarker.org/

No Stomach For Cancer We Are Here to Provide Support, Guidance, Information, and Resources to Stomach Cancer Patients and Caregivers. No Stomach For Cancer is a non-profit patient advocacy organization that advances awareness and education about stomach cancer. We support research efforts for screening, early detection, treatment, and prevention of stomach cancer.

https://nostomachforcancer.org/

The Farrah Fawcett Foundation We Honor Farrah's Own Fight With Cancer By Passionately Giving To Cutting edge HPV-related cancer research in memory of Farrah’s life and fight to the end; Patient assistance funds for those faced with mounting expenses during treatment; and Prevention programs to help spread the word so the cancer struggle will cease.

https://thefarrahfawcettfoundation.org/

Anal Cancer Foundation The Anal Cancer Foundation is dedicated to empowering anal cancer patients and accelerating prevention and treatment methods that eliminate this disease. 

https://www.analcancerfoundation.org/

Global Colon Cancer Association The Global Colon Cancer Association (GCCA) advocates for equitable access to quality colorectal cancer screenings, testing, treatments, and care, because where you live should not determine whether you can prevent or survive colorectal cancer. As both a membership-based umbrella organization and a patient advocacy organization, GCCA works toward this goal by amplifying and supporting the efforts of our member organizations, by developing adaptable advocacy and educational materials for our members, and by conducting our own advocacy, education, and initiatives that ensure patients are at the heart of all policy discussions.

https://www.globalcca.org/

10 Things to Know About Neuroendocrine Tumors (MD Anderson) While the name “neuroendocrine” implies that these tumors involve both nerve cells and hormones, they are mainly thought to come from endocrine cells. The “neuro-” is more of a quirk of history. Neuroendocrine tumors are cancers that can develop anywhere endocrine cells are present. Endocrine cells help regulate various body functions, such as growth, reproduction and metabolism. They are distributed throughout the body, but the most common places for tumors to develop from them are in the lungs, small intestines, and pancreas.

https://www.mdanderson.org/cancerwise/neuroendocrine-tumors--9-things-to-know.h00-159379578.html

Esophageal Cancer Action Network (ECAN)

https://ecan.org/

Appendix Cancer Connection was founded to provide support and information to those newly diagnosed with Appendix Cancer.

https://appendix-cancer.org/

Appendix Cancer Pseudomyxoma Peritonei Research Foundation Our organization exists to support and fund promising research that moves us toward a cure for pseudomyxoma peritonei (PMP), appendix cancer, and related peritoneal surface malignancies (PSM). We also endeavor to support the PMP, appendix cancer and PSM community of patients and their caregivers by providing the latest, most accurate information about the best practices in managing their disease.

https://acpmp.org/

HPV Cancers Alliance Our mission is to empower individuals with knowledge about the health and lifestyle impact of HPV infection and embolden them to take the necessary action to prevent and treat the virus and eliminate its consequences.

https://hpvca.org/

Liver Lovers Legend: Dr. Yuman Fong on Colorectal Cancer Liver Metastasis & Treatments (Colontown, YouTube 2024)

https://www.youtube.com/watch?v=fISm2SqI2t4

NCI: Uterine Cancer (Endometrial and Uterine Sarcoma)

Uterine Cancer—Patient Version - NCI 

NCI: Ovarian, Fallopian Tube, and Primary Peritoneal Cancer

Ovarian, Fallopian Tube, and Primary Peritoneal Cancer—Patient Version - NCI 

NCI: Cervical Cancer

What Is Cervical Cancer? - NCI 

NCI: Vaginal Cancer

Vaginal Cancer—Patient Version - NCI 

NCI: Penile Cancer

Penile Cancer—Patient Version - NCI 

NCI: Testicular Cancer

Testicular Cancer—Patient Version - NCI 

NCI: Urethral Cancer

Urethral Cancer—Patient Version - NCI 

Urethral Cancer (OncoLink)

Urethral Cancer | OncoLink 

Urology Care Foundation

Home - Urology Care Foundation (urologyhealth.org) 

Endocrine Society

Patient Engagement | Endocrine Society 

The Carcinoid Cancer Foundation: The mission of this foundation is to increase awareness and educate the general public and healthcare professionals regarding carcinoid and related neuroendocrine tumors (NETs), to support NET cancer patients and their families, and to serve as patient advocates.

Home - Carcinoid Cancer Foundation 

Bladder Cancer Advocacy Network BCAN

Bladder Cancer Advocacy Network (bcan.org) 

National Cervical Cancer Coalition

NCCC – NCCC is a nonprofit providing in information and support for people and their families experiencing cervical cancer or HPV disease. (nccc-online.org) 

Foundation for Women's Cancer (part of the Society of Gynecologic Oncology)

Home - Foundation For Women's Cancer (foundationforwomenscancer.org) 

Cure Cervical Cancer

Home - CureCervicalCancer 

Cervical Cancer Action for Elimination

Cervical Cancer Action for Elimination 

Ovarian Cancer Research Alliance

Ovarian Cancer Research Alliance | OCRA (ocrahope.org) 

Endometrial Cancer Foundation/International Society of Gynecologic Cancer

International Society of Gynecologic Cancer (igcs.org) 

ECANA Endometrial Cancer Action Network for African-Americans

Endometrial Cancer Action Network for African-Americans | ECANA (ecanawomen.org) 

Testicular Cancer Foundation

Donation to the Testicular Cancer Foundation | Support Groups US 

Testicular Cancer Awareness Foundation

Testicular Cancer Awareness Foundation 

Testicular Cancer Information & Support This site has been developed for the sole purpose of education and support for patients with testicular cancer and their family members. Please take a look at all of our testicular cancer resources and articles. Our site has grown to be more that just information on testicular cancer. The focus of this site is our testicular cancer support forums, where you can share your experience with and/or get answers to your many questions about testicular cancer.

https://www.tc-cancer.com/

The Testicular Cancer Resource Center is a charitable organization devoted to helping people understand testicular and extragonadal germ cell tumors. Specifically, we provide accurate and timely information about these tumors and their treatment to anyone and everyone interested. We have information for patients, caregivers, family, friends, and physicians. We believe that our information and links are of the highest quality, and we are blessed with the support of some of the finest doctors in the field.

http://thetcrc.org/

Movember Nuts & Bolts Testicular Cancer Support

Testicular cancer resource center & information (movember.com) 

Testicular Cancer Society 

Testicular Cancer Society 

Cancer of the Penis: The Urology Foundation

Cancer of the Penis (Penile Cancer) - The Urology Foundation 

Steps Through OC: Support for Life with Ovarian Cancer Steps Through OC is a six-month program of The Clearity Foundation consisting of free professional counseling in tandem with education, referrals and other resources for any woman facing ovarian cancer, her family and active caregivers. Our goal is to support physical and emotional health so people feel, function and live well with OC.

Steps Through OC: Support for Life with Ovarian Cancer 

SHARE Cancer Support We provide dedicated, experienced support for women facing breast, ovarian, uterine, cervical or metastatic breast cancer.

SHARE | Support for Women's Cancers (sharecancersupport.org) 

Cervivor is a global community of patient advocates who inspire and empower those affected by cervical cancer by educating and motivating them to use their voices for creating awareness to end stigma, influence decision and change, and end cervical cancer.

https://cervivor.org/

Spot Her® for Endometrial Cancer Too often, women with endometrial cancer (EC) have reported that their symptoms were stigmatized and dismissed. Even though diagnoses and deaths from this type of uterine cancer are on the rise, EC remains under-recognized. Spot Her® is an initiative to help end the silence around EC and empower all people across generations and cultures to speak up, take action, and spot the potential signs at an early stage—when EC may be more treatable. When we rally around a cause, change happens. Join us in our pledge to #SpotHerforEC and raise our voices around this serious cancer—for our friends, our family, and ourselves.

https://www.spotherforec.com/

GYNCA Gyn Cancers Alliance provides education, resources and support to local women and caregivers affected by gynecologic cancers. We value our community. We strive to provide as many resources to our survivors as possible and are fortunate to be able to connect with many organizations, businesses, volunteers and donors that help us do just that. GYNCA staff, survivors and volunteers regularly attend community events to spread the word about gynecologic cancer symptoms, diagnosis and support.

GYN Cancers Alliance 

Unite for Her is a 501(c)3 national nonprofit organization that supports breast cancer and ovarian cancer patients by providing integrative therapies, services, education, resources, and support at no personal cost. We are committed to being a safe space for people of all sexual orientations/gender identities. Through the Unite for HER Wellness Passport Program, you will receive up to $2,000 worth of integrative therapies and services free, without any cost to you. This will allow you to create a personal care plan that speaks to you personally, helping you mitigate unwanted side effects and symptoms. These therapies and treatments, scientifically and research based, are proven to help support empower and restore you physically as well as emotionally, at a time when you are in much need.

https://uniteforher.org/

Ovarcome Our mission is to raise global awareness, to fund research in search of a cure, and to provide financial, psycho-social, and informational support to Ovarcomers. Ovarcome is inspired by the simple philosophy of support, love, and celebration of life.

Our dream is a world that is free from the scourge of ovarian cancer.

https://ovarcome.org/

NormaLeah Ovarian Cancer Initiative In 2016, we changed our name and adopted a new mission that more accurately describes our initiatives and serves as the basis of activities that advance our mission: to enrich lives through early detection education, patient support services and research funding for ovarian cancer — the silent killer of women. Our goal is to empower all women (and those who love them) to recognize the subtle symptoms of ovarian cancer, to assess their personal risk, to explore risk-reduction strategies and to advocate for proper medical attention for the best outcome. Our efforts are contributing to reduced incidence and mortality rates of ovarian cancer. We dream of the day when a screening test is developed and it becomes a routine part of every woman’s annual wellness exam. 

https://www.normaleah.org/

Cervical Cancer Resources & Videos (Fight Cancer Global)

https://www.fightcancerglobal.org/info/resources

World Ovarian Cancer Coalition

https://worldovariancancercoalition.org/

International Papillomavirus Society (IPVS)

https://ipvsoc.org/

HPV Cancers Alliance Our mission is to empower individuals with knowledge about the health and lifestyle impact of HPV infection and embolden them to take the necessary action to prevent and treat the virus and eliminate its consequences.

https://hpvca.org/

NCI: Head and Neck Cancer

Head and Neck Cancer—Patient Version - NCI 

Head and Neck Cancers (OncoLink)

Head and Neck Cancers | OncoLink 

THANC Thyroid, Head and Neck Cancer Foundation

Thyroid, Head and Neck Cancer (THANC) Foundation (thancfoundation.org) 

THANC Guide Providing Knowledge, Hope and Support to Thyroid, Head and Neck Cancer Patients

https://thancguide.org/

Oral Cancer Foundation

Oral Cancer Foundation | Information and Resources about Oral Head and Neck Cancer  

Head & Neck Cancer Alliance (HNCA)

Home - Head and Neck Cancer Alliance 

Head & Neck Cancer Alliance Support Community The Head and Neck Cancer Alliance (HNCA) is proud to support a free online community on Inspire for individuals, and their loved ones, who are facing oral, head and neck cancers. This free online community offers peer-to-peer support and a safe environment so you can connect with others experiencing or who have experienced the diagnosis, treatments and outcomes similar to yours. You can start or respond to discussions in the community, upload photos and search for specific topics to find other members who share the same interests.

https://www.headandneck.org/support-community/

NCI: Thyroid Cancer

Thyroid Cancer—Patient Version - NCI 

American Thyroid Association

Thyroid Cancer | American Thyroid Association 

Endocrine Society

Patient Engagement | Endocrine Society 

Hormones and Thyroid Cancer: What You Need to Know (endocrine.org)

hormones_and_thyroid_cancer_what_you_need_to_know.pdf (endocrine.org) 

Mechanistic Insights of Thyroid Cancer Progression (Journal of Endocrinology, 2023)

Mechanistic Insights of Thyroid Cancer Progression | Endocrinology | Oxford Academic (oup.com) 

Radiation-Related Thyroid Cancer (Endocrine Reviews Journal, 2023)

Radiation-Related Thyroid Cancer | Endocrine Reviews | Oxford Academic (oup.com) 

10 Things to Know About Neuroendocrine Tumors(MD Anderson) While the name “neuroendocrine” implies that these tumors involve both nerve cells and hormones, they are mainly thought to come from endocrine cells. The “neuro-” is more of a quirk of history. Neuroendocrine tumors are cancers that can develop anywhere endocrine cells are present. Endocrine cells help regulate various body functions, such as growth, reproduction and metabolism. They are distributed throughout the body, but the most common places for tumors to develop from them are in the lungs, small intestines, and pancreas.

https://www.mdanderson.org/cancerwise/neuroendocrine-tumors--9-things-to-know.h00-159379578.html

Thyroid Cancer: Types, Symptoms, Causes & Treatments (Cleveland Clinic)

https://my.clevelandclinic.org/health/diseases/12210-thyroid-cancer

Types of Thyroid Cancer (City of Hope)

https://www.cancercenter.com/cancer-types/thyroid-cancer/types

Thyroid Cancer Treatment (NCI)

https://www.cancer.gov/types/thyroid/patient/thyroid-treatment-pdq

ThyCa: Thyroid Cancer Survivors' Association 

https://thyca.org/

CancerCare: Head & Neck Cancer Information & Resources

Head, Neck, Cancer, Information, Resources (cancercare.org) 

SPOHNC Support for People with Oral and Head and Neck Cancer

SPOHNC: Support for People with Oral and Head and Neck Cancer - SPOHNC: Support for People with Oral and Head and Neck Cancer 

HNC Living Foundation: Help for Head and Neck Cancer Patients

HNC Living Foundation | Help for Head & Neck Cancer Patients 

American Head & Neck Society

AHNS - American Head and Neck Society - Head and Neck Cancer Research & Education 

Head and Neck Cancer Support Society A community-based organization of volunteers, working in partnership with researchers, health care professionals, agencies and service providers, to provide peer support to persons diagnosed with and/or recovering from head and neck cancer and their caregivers. 

Head and Neck Cancer Support Society | By the patients, for the patients (head-way.org) 

Resources for Head & Neck Cancer Survivors (MSKCC) This information includes resources to help people who have survived head and neck cancer manage the side effects of treatment, improve quality of life, and receive emotional support. It includes tips from other survivors, as well as from healthcare providers who treat people with head and neck cancer.

https://www.mskcc.org/cancer-care/patient-education/resources-head-and-neck

The Throat Cancer Foundation (TCF) was founded in 2012 by  oropharyngeal cancer survivor Jamie Rae. Following his treatment and recovery, Jamie was concerned by the lack of resources and support available to people facing throat cancers, and established the charity to provide what was missing: information and reassurance for those facing throat cancers. We are dedicated to reducing the impact of throat cancers on individuals and wider society. We are here to offer support, and want to ensure that anyone affected, including the person who has cancer, their friends, and their loved ones, has access to the most up to date information available regarding their illness, the available treatments, and what to expect in recovery. Our work is guided by a team of leading cancer experts and consultants working in research and treatment of the illnesses we aim to fight. 

https://www.throatcancerfoundation.org/

Head & Neck Cancer (Cancer Support Community) Head and neck cancers (HNC) include cancers of the oral cavity (including lip cancer and tongue cancer), larynx (laryngeal cancer), pharynx (pharyngeal cancer), hypopharynx (hypopharyngeal cancer), nasal cavity (including nasopharyngeal cancer), salivary glands, and sinuses (paranasal sinus cancer).

https://www.cancersupportcommunity.org/head-neck-cancer

Gromada Head & Neck Cancer Foundation

https://www.gromadacancerfndn.org/

Laryngeal and Hypopharyngeal Cancer (American Cancer Society)

https://www.cancer.org/cancer/types/laryngeal-and-hypopharyngeal-cancer.html

Laryngeal Cancer Treatment Adult PDQ (NCI)

https://www.cancer.gov/types/head-and-neck/patient/adult/laryngeal-treatment-pdq

Hypopharyngeal Cancer Treatment Adult PDQ (NCI)

https://www.cancer.gov/types/head-and-neck/patient/adult/hypopharyngeal-treatment-pdq

Nasopharyngeal Cancer (American Cancer Society)

https://www.cancer.org/cancer/types/nasopharyngeal-cancer.html

Nasopharyngeal Cancer Treatment PDQ (NCI)

https://www.cancer.gov/types/head-and-neck/patient/adult/nasopharyngeal-treatment-pdq

Oral Cavity (Mouth) and Oropharyngeal (Throat) Cancer (American Cancer Society)

https://www.cancer.org/cancer/types/oral-cavity-and-oropharyngeal-cancer.html

Lip and Oral Cavity Cancer Treatment Adult PDQ (NCI)

https://www.cancer.gov/types/head-and-neck/patient/adult/lip-mouth-treatment-pdq

Oropharyngeal Cancer Treatment PDQ (NCI)

https://www.cancer.gov/types/head-and-neck/patient/adult/oropharyngeal-treatment-pdq

Nasal Cavity (Nose) and Paranasal Sinus Cancer (American Cancer Society)

https://www.cancer.org/cancer/types/nasal-cavity-and-paranasal-sinus-cancer.html

Paranasal Sinus and Nasal Cavity Cancer Treatment PDQ (NCI)

https://www.cancer.gov/types/head-and-neck/patient/adult/paranasal-sinus-treatment-pdq

Parotid Gland (Salivary Gland) Cancer (Johns Hopkins Medicine)

https://www.hopkinsmedicine.org/health/conditions-and-diseases/parotid-gland-tumors

Salivary Gland Cancer Treatment PDQ (NCI)

https://www.cancer.gov/types/head-and-neck/patient/adult/salivary-gland-treatment-pdq

Salivary Gland Cancer: 9 Things to Know (MD Anderson)

https://www.mdanderson.org/cancerwise/salivary-gland-cancer--9-things-to-know.h00-159618645.html

Parotid Patient Project is dedicated to improving the total care of patients with parotid tumors. As advocates for the patient, we educate and empower them to make good decisions regarding their care, and we generate funds for research to identify the causes of parotid tumors and to advance the diagnosis, management, and outcomes for parotid gland diseases.

https://parotidpatientproject.org/

Metastatic Squamous Neck Cancer with Occult Primary Treatment PDQ (NCI)

https://www.cancer.gov/types/head-and-neck/patient/adult/metastatic-squamous-neck-treatment-pdq

International Papillomavirus Society (IPVS)

https://ipvsoc.org/

The International Association of Laryngectomees supports, promotes, encourages, and educates individuals with a laryngectomy, along with their caregivers, Speech Language Pathologists, allied health professionals, and support groups around the world. A laryngectomy is the complete surgical removal of the larynx, because of cancer or other reasons, rendering a person speechless, with a different way of breathing and swallowing. 

https://www.theialvoice.org/

HPV Cancers Alliance Our mission is to empower individuals with knowledge about the health and lifestyle impact of HPV infection and embolden them to take the necessary action to prevent and treat the virus and eliminate its consequences.

https://hpvca.org/

NCI: Kidney/Renal Cell Cancer

Kidney (Renal Cell) Cancer—Patient Version - NCI 

American Kidney Cancer Association

Home - Kidney Cancer Association 

American Kidney Fund

Support Kidney Patients - American Kidney Fund 

National Kidney Foundation

Welcome - The National Kidney Foundation 

Kidney Cancer Research Alliance/KCCure

KCCure | Kidney Cancer Research | Kidney Cancer Awareness | 

Action to Cure Kidney Cancer

ACKC.org | ACTION TO CURE KIDNEY CANCER 

Judy Nicholson Kidney Cancer Foundation

Homepage - Judy Nicholson Kidney Cancer Foundation (jnfkidneycancer.org) 

KidneyCAN

KidneyCAN | Accelerating Cures for Kidney Cancer 

Kidney Cancer Association

Home - Kidney Cancer Association 

International Kidney Cancer Coalition

Home - IKCC International Kidney Cancer Coalition 

Urology Care Foundation

Home - Urology Care Foundation (urologyhealth.org) 

ACC C.U.R.E Crusade Until a Resolution Exists. A Nonprofit Organization For Adrenal Cancer Research

HOME | acccure 

National Adrenal Diseases Foundation NADF

National Adrenal Diseases Foundation - Home (nadf.us) 

BHD Foundation BHD (Birt-Hogg-Dubé syndrome) is a rare genetic condition that may cause lung collapses, skin bumps and kidney cancer. At the BHD Foundation, we provide advice on being diagnosed and living with BHD.  Find out about the symptoms, hear from other people with BHD and take part in our events. You can also help us raise awareness of BHD. Together we can inform, empower, and connect the BHD community worldwide.

https://www.thebhdfoundation.org/

American Association of Kidney Patients (AAKP)

https://aakp.org/

Action Kidney Cancer

https://actionkidneycancer.org/

NCI: Leukemia

Leukemia—Patient Version - NCI (cancer.gov) 

NCI: Lymphoma

Lymphoma—Patient Version - NCI (cancer.gov) 

NCI: Plasma Cell Neoplasms (including Multiple Myeloma)

Plasma Cell Neoplasms (Including Multiple Myeloma)—Patient Version - NCI (cancer.gov) 

NCI: Myeloproliferative Neoplasms/Myelodysplastic Syndromes

Myeloproliferative Neoplasms—Patient Version - NCI (cancer.gov) 

Leukemia & Lymphoma Society

Leukemia & Lymphoma Society | Blood Cancer Leaders | LLS 

Leukemia Research Foundation

Home - Leukemia Research Foundation (leukemiarf.org) 

Lymphoma Research Foundation

Lymphoma Research Foundation | Finding Cures Starts Here | LRF 

Multiple Myeloma Research Foundation

The MMRF | Multiple Myeloma Research Foundation 

Lymphoma Out Loud #LOL We’re a young charity with a rebel spirit, on a mission to disrupt lymphoma. We’re throwing lymphoma the middle finger. Join our campaign and represent your county to give lymphoma the big UP YOURS.

https://lymphomaoutloud.org/

Follicular Lymphoma Foundation Follicular lymphoma (FL) is a type of blood cancer that affects the lymph nodes. Through collaborative efforts with patients and global FL experts, we combine compassion with cutting-edge research to revolutionise treatment and improve outcomes for over one million patients worldwide. On a global mission to cure follicular lymphoma. With patients at the heart of everything we do, we are leading the way in FL research and treatment to ultimately find a cure and fast.

https://www.theflf.org/

American Society of Hematology

American Society of Hematology - Hematology.org 

DKMS We Delete Blood Cancer DKMS is an international nonprofit organization dedicated to the fight against blood cancer and blood disorders – always with the purpose of providing as many patients as possible with a second chance at life.

US | DKMS 

CLL Society (chronic lymphocytic leukemia and small lymphocytic lymphoma)

CLL Society, the Leading Authority for CLL and SLL Patients 

Aplastic Anemia & MDS International Foundation 

Learning is Hope | Aplastic Anemia & MDS International Foundation (aamds.org) 

MDS Foundation: The Myelodysplastic Syndromes Foundation

MDS Foundation | MDS is a bone marrow failure disorder (mds-foundation.org) 

HealthTree Foundation for Multiple Myeloma

Multiple Myeloma News - HealthTree Myeloma 

T-Cell Leukemia Lymphoma Foundation

T-Cell Leukemia Lymphoma Foundation | Seattle, WA (tcllfoundation.org) 

Blood & Marrow Transplant Information Network 

BMT Infonet | 

International Waldenstrom's Macroglobulinemia Foundation

International Waldenstrom’s Macroglobulinemia Foundation - International Waldenstrom’s Macroglobulinemia Foundation (iwmf.com) 

National Bone Marrow Transplant Link

National Bone Marrow Transplant LINK (nbmtLINK) | Bone Marrow Transplant 

MPN Research Foundation Helping people with an MPN live a better quality of life as we work toward answers to prevention, progression and a cure for polycythemia vera (PV), essential thrombocythemia (ET), and myelofibrosis (MF) – blood cancers collectively known as myeloproliferative neoplasms. Through a combination of MPN cancer research, advocacy, and education, we bring together patients, researchers, and clinicians around the common goal of realizing new treatment options and, ultimately, a cure for MPNs.

 MPN Research Foundation – Research Foundation funding MPN Research 

Patients Against Lymphoma Evidence-based support and information

https://lymphomation.org/

NCI: What is Liver Cancer?

What Is Liver Cancer? - NCI 

American Liver Foundation

Liver - American Liver Foundation 

Will Rodgers Liver Health Foundation

Will Rodgers Liver Health Foundation 

Hepatitis B Foundation: Liver Cancer Connect Program

Welcome to our Liver Cancer Connect Program » Hepatitis B Foundation (hepb.org) 

Blue Faery: The Adrienne Wilson Liver Cancer Association

Blue Faery: The Adrienne Wilson Liver Cancer Association 

Liver Central/Global Liver Institute: Our values of patient-centeredness, collaboration, integrity, inclusion, and results drive our mission to improve the lives of individuals and families facing liver-related issues.

Liver Central - Reinventing Liver Cancer Education 

Focused Ultrasound for Liver Tumors (FUS) In October 2023, the US Food and Drug Administration cleared HistoSonics’ Edison device to noninvasively treat liver tumors using histotripsy.

Liver Tumors - Focused Ultrasound Foundation (fusfoundation.org) 

What is Bile Duct Cancer? (Cholangiocarcinoma) (NCI)

https://www.cancer.gov/types/liver/bile-duct-cancer

Bile Duct Cancer Treatment (NCI)

https://www.cancer.gov/types/liver/bile-duct-cancer/treatment

Cholangiocarcinoma Foundation Founded in 2006, the Cholangiocarcinoma Foundation is a global 501(c)(3) non-profit organization and our mission is to find a cure and improve the quality of life for cholangiocarcinoma patients

https://cholangiocarcinoma.org/

Newly Connected Program (Cholangiocarcinoma Foundation) Are you or a loved one navigating a cholangiocarcinoma diagnosis? CCF understands that a diagnosis can leave patients feeling isolated and afraid. Whether you’re newly diagnosed or new to the Foundation, we are here to support you and your loved ones. You are not alone. To help us better guide you, we encourage you to take our Welcome Survey and join our Newly Diagnosed/Newly Connected program. This survey takes 10 minutes to complete and provides quick access to resources such as: A Newly Diagnosed/Newly Connected Care Kit, Navigating a Cholangiocarcinoma Diagnosis: Resource Roadmap Workbook and its related webinar hosted by our Chief Patient Officer and our Newly Connected email series, and a 1:1 meeting with a CCF Patient Advocate. You’ll learn about support groups, CCF’s mentorship program, free books, and more.

https://cholangiocarcinoma.org/newly-diagnosed/

Global Cholangiocarcinoma Alliance The Global Cholangiocarcinoma Alliance (GCA) has united to establish a global voice in cholangiocarcinoma (CCA) through community collaborations. The GCA has a shared vision to raise the awareness of CCA in order to improve prevention, survival and the quality of life of CCA patients globally.

https://www.globalccaalliance.com/

AMMF The Cholangiocarcinoma Charity AMMF is the UK’s only cholangiocarcinoma charity, dedicated to tackling this devastating cancer on all fronts: providing information and support, campaigning to raise awareness, and encouraging and supporting research.

https://ammf.org.uk./

The Bili Project The Bili Project Foundation’s mission is to reduce the incidence and improve the outcome of  Hepatobiliary cancers, which are cancers of the liver, gallbladder or bile ducts (Cholangiocarcinoma). We promote research to identify early signs and symptoms as well as treatment options for this silent, fast acting group of cancers.

https://thebiliprojectfoundation.org/

NCI: Lung Cancer

Lung Cancer—Patient Version - NCI 

Types of Lung Cancer (American Lung Association)

https://www.lung.org/lung-health-diseases/lung-disease-lookup/lung-cancer/basics/lung-cancer-types

Types of Lung Cancer (Lungevity)

https://www.lungevity.org/for-patients-caregivers/lung-cancer-101/types-of-lung-cancer

NCI: Malignant Mesothelioma

Malignant Mesothelioma—Patient Version - NCI (cancer.gov) 

NCI: Thymoma & Thymic Carcinoma

Thymoma and Thymic Carcinoma—Patient Version - NCI (cancer.gov) 

Lung Pathology (American Cancer Society)

Understanding Your Lung Pathology Report | American Cancer Society 

LUNGevity

Home | LUNGevity Foundation 

American Lung Association

Home | American Lung Association 

GO2 for Lung Cancer

GO2 for Lung Cancer - Support for Patients, Survivors & Caregivers 

Lung Cancer Foundation of America

Lung Cancer Foundation of America: Research and Awareness (lcfamerica.org) 

Non-Small Cell Lung Cancer (Yale Medicine)

https://www.yalemedicine.org/conditions/non-small-cell-lung-cancer

Lung Cancer Caring Ambassadors Program Our three main methods to fight lung cancer are to Empower patients and providers with access to free educational materials, and resources; to Educate communities about the importance of screening and to share current information with patients and their families; and to Advocate for access to screening and treatment for lung cancer for all communities. 

Home | Caring Ambassadors Lung Cancer Program (lungcancercap.org) 

Lung Cancer Research Foundation Lung Cancer Support Line 1-844-835-4325 The mission of the Lung Cancer Research Foundation (LCRF) is to improve lung cancer outcomes by funding research for the prevention, diagnosis, treatment and cure of lung cancer.

https://www.lungcancerresearchfoundation.org/

LiveLung (and Prosper!) Since 2010, LiveLung has been on a mission to advance lung cancer education, early detection and compassion for people impacted by lung cancer. We do this by hosting a network of monthly community lung cancer patient groups. We also provide gift bags to dozens of cancer centers where nurse navigators give them to newly diagnosed lung cancer patients. We are a 501(c)(3) nonprofit organization that believes we are here to serve the lung cancer community, not the other way around. We understand the financial toxicity that comes with a lung cancer diagnosis. While we gratefully accept donations, we do not solicit donations at our group meetings nor harass patients for donations. 

Advancing Small Cell Lung Cancer Research - LiveLung 

LiveLung Hope Totes LiveLung provides Hope Totes to dozens of cancer centers where nurse navigators distribute them to newly diagnosed lung cancer patients. Hope Totes are gift bags filled with thoughtful, practical items to help patients on their treatment journey. These gifts are one way we demonstrate compassion for the lung cancer community. In addition to the many helpful items such as a notebook, pocket calendar, “The ABCs of Lung Cancer for Patients and Advocates,” book, and more, Hope Totes include a postcard with contact information and details about a community meeting. So, our Hope Totes are also an outreach tool to connect patients with others in their community. We provide Hope Totes to communities where we host monthly educational patient group meetings. We are also now making it possible for individuals to sponsor a Hope Tote for us to give to cancer centers or send to a patient.

https://livelung.org/hope-totes/

Lung Cancer, Support, Information, Resources (CancerCare)

https://www.cancercare.org/diagnosis/lung_cancer

Comprehensive Biomarker Testing for Lung Cancer (LCRF)

https://www.lungcancerresearchfoundation.org/for-patients/comprehensive-biomarker-testing-for-lung-cancer/

10 Things to Know About Neuroendocrine Tumors (MD Anderson) While the name “neuroendocrine” implies that these tumors involve both nerve cells and hormones, they are mainly thought to come from endocrine cells. The “neuro-” is more of a quirk of history. Neuroendocrine tumors are cancers that can develop anywhere endocrine cells are present. Endocrine cells help regulate various body functions, such as growth, reproduction and metabolism. They are distributed throughout the body, but the most common places for tumors to develop from them are in the lungs, small intestines, and pancreas.

https://www.mdanderson.org/cancerwise/neuroendocrine-tumors--9-things-to-know.h00-159379578.html

Neuroendocrine Cancer Awareness Network (NCAN) is a non-profit organization dedicated to raising awareness of Neuroendocrine Cancer, providing support for caregivers and people with NETs, and funding for NET cancer research. Since 2003, it has been our mission, or as we like to say, our passion, to educate and support the NET community as a whole. That’s our thing.

https://netcancerawareness.org/

Neuroendocrine Tumor Research Foundation The mission of the Neuroendocrine Tumor Research Foundation is to fund research to discover cures and more effective treatments for neuroendocrine cancers. The Neuroendocrine Tumor Research Foundation is committed to improving the lives of patients, families, and caregivers affected by neuroendocrine cancer by providing information and educational resources.

https://netrf.org/

International Neuroendocrine Cancer Alliance (INCA) INCA is the global voice for patients with neuroendocrine cancer and genetic neuroendocrine tumors (NETs) and their carers with a mission to: raise awareness about all types of NETs; push for scientific advancements with a focus on identified unmet needs; and provide a platform for global collaboration to address the many challenges NET patients and the medical community face, in securing a timely diagnosis and accessing optimal treatment, support and care

https://incalliance.org/

The Carcinoid Cancer Foundation Serving the Neuroendocrine Tumor (NET) Community for Over 50 Years. The Carcinoid Cancer Foundation began as the Carcinoid Tumor and Serotonin Research Foundation in 1968 when the NIH fund for rare cancers was terminated. The name was changed to the Carcinoid Cancer Foundation in 1995. It is a nonprofit organization chartered by the State of New York for the purpose of encouraging and supporting education and research on carcinoid and related neuroendocrine cancers.

https://www.carcinoid.org/

LACNETS Learn. Advocate. Connect. A Neuroendocrine Tumor Society The mission of the Learn Advocate Connect Neuroendocrine Tumor Society (LACNETS) is to provide a community of support and education for patients (those with neuroendocrine cancer) and to advocate for all people impacted by this rare disease by expanding awareness and by voicing the patient’s perspective in collaborative dialogue with healthcare professionals.  We aim to improve the quality of life of those with neuroendocrine cancer by offering support and expanded access to information on diagnosis, treatment options, research, and resources. LACNETS makes it possible for patients to share experiences, encouragement, and hope.

https://www.lacnets.org/

A Breath of Hope Lung Foundation fights lung cancer by funding innovative U.S. lung cancer research, raising awareness and supporting lung cancer patients and families.

https://abreathofhope.org/

Free ME from Lung Cancer is a non-profit organization. We are dedicated to raising money for lung cancer research, education, advocacy, and community support. We are committed to making lung cancer a national priority. Our mission is to decrease the suffering caused by a diagnosis of lung cancer by raising much-needed money for lung cancer research, education, and community support.

https://www.freemefromlungcancer.org/

Lung Cancer Registry The Registry was designed so that patients could contribute their individual experiences with lung cancer through survey questions asking about the patient, their medical history and diagnosis, treatment, outcomes, and quality of life. The information provided is completely secure; the user decides who sees the information, how it will be used and if they want to be contacted by Registry staff.

https://lungcancerregistry.org/

The Lung Cancer Action Network (LungCAN®) is a collaborative group of lung cancer advocacy organizations that have come together to raise public awareness about the realities of lung cancer. Our intention is to increase funding for detecting, treating and curing the disease.

https://lungcan.org/

Lung Cancer Caring Ambassadors Our Mission is to improve the lives of patients and communities by empowering and educating them to be advocates for their own health.

https://caringambassadors.org/lung-cancer/

NCI: Brain Tumors

Brain Tumors—Patient Version - NCI (cancer.gov) 

NCI: Neuroblastoma

Neuroblastoma—Patient Version - NCI (cancer.gov) 

NCI: Pituitary Tumors

Pituitary Tumors—Patient Version - NCI (cancer.gov) 

About Carcinoid Cancer & Neuroendocrine Tumors (CCF)

https://www.carcinoid.org/for-patients/general-information/

Glioblastoma Foundation

Glioblastoma Treatment & Research | Glioblastoma Foundation - Transforming Glioblastoma Therapy 

National Brain Tumor Society

National Brain Tumor Society | Community here. Breakthroughs ahead. 

American Brain Tumor Association

Home - American Brain Tumor Association (abta.org) 

Oligo Nation: Uniting for a Cure

Brain Cancer Research - Oligo Nation 

Keep Punching Let's knock brain cancer out for the count. ​Keep Punching, Inc., supports patients, healthcare providers, and researchers in their fight to prevent and eradicate brain cancer and minimize treatment-related side effects that may impact function and comfort.

Funds raised assist individuals with brain cancer and their families; providers who are pursuing integrative approaches to healing; and researchers who are investigating traditional and complementary cancer-related therapies.

https://www.keeppunching.org/

The Carcinoid Cancer Foundation is the oldest nonprofit carcinoid/and related neuroendocrine tumor organization in the United States, founded in 1968. The mission of this foundation is to increase awareness and educate the general public and healthcare professionals regarding carcinoid and related neuroendocrine tumors (NETs), to support NET cancer patients and their families, and to serve as patient advocates.

https://www.carcinoid.org/

Brain Tumor Network: Our mission is to provide free, individualized navigation to help patients and loved ones manage a primary brain tumor diagnosis, overcome treatment obstacles, and facilitate access to quality healthcare.

Home — Brain Tumor Network 

Meningioma Mommas Our mission is to provide support and valuable resources to all those affected meningioma brain tumors. Meningioma Mommas is a 501 (c) (3) not-for-profit organization, which provides support and valuable resources to all those affected by meningioma brain tumors. We are dedicated to raising meningioma awareness and funding for meningioma specific research.

https://www.meningiomamommas.org/

Brain Tumor Foundation: BTF raises awareness among medical professionals and the public about the need for the early detection of brain tumors while continuing to offer support groups, medical referrals, and informational events. The Foundation’s expertise, compassion and resources ensure that brain tumor patients have a powerful ally in their fight against this disease.

Home - Brain Tumor Foundation 

End Brain Cancer

Home - End Brain Cancer 

Ivy Foundation: We fund cutting-edge research that will improve diagnostics and treatment options for patients with brain cancer.

Home - Ivy Foundation 

The Broach Foundation for Brain Cancer Research

The Broach Foundation 

Musella Foundation for Brain Tumor Research & Information

Brain Tumor Treatments and Information (virtualtrials.org) 

Acoustic Neuroma Association (ANA) was founded in Carlisle, PA in 1981 by Virginia Fickel Ehr. After having surgery for the removal of an acoustic neuroma in 1977, she resolved that future acoustic neuroma patients should have easy-to-read medical materials about their condition, as well as support and comfort from other patients. The ANA is a 501(c)(3) nonprofit organization (Tax ID 23-2170836) that serves over 3,000 members including acoustic neuroma patients, family members, friends, and healthcare professionals.

https://www.anausa.org/

Brains for the Cure Advocacy, Education, and Connection For the Brain Tumor Community. Advice, stories, and resources, in collaboration with doctors, patients, and caregivers for every step of the brain tumor journey. 

https://brainsforthecure.org/

Chordoma Foundation In 2007, a handful of families affected by chordoma came together with the conviction that the options available to us weren’t acceptable. We realized that by teaming up, we’d have a chance of creating a better future for those of us affected by this disease then and everyone who came next. Despite long odds, the chordoma community has fueled progress that's virtually unprecedented for a rare cancer. And we'll keep pressing forward until everyone facing chordoma has the treatments we need.

https://www.chordomafoundation.org/

Mission4Maureen provides financial assistance to families burdened by the staggering cost of brain cancer treatment. Mortgages, utilities, and car repair expenses need to be met, and many brain cancer patients simply do not have the wherewithal to meet those obligations.  Mission4Maureen provides financial assistance to families who are burdened by the staggering cost of brain cancer treatment.

https://mission4maureen.org/

Tug McGraw Foundation Improving quality of life for those affected by brain-related military trauma and glioblastoma brain tumors through education, resources and brain wellness programs.

https://www.tugmcgraw.org/

NCI: Pancreatic Cancer

Pancreatic Cancer—Patient Version - NCI 

Let's Win Pancreatic Cancer

Let's Win PC - Pancreatic Cancer Resources, News, & Research - Let's Win Pancreatic Cancer (letswinpc.org) 

Pancreatic Cancer Action Network

Pancreatic Cancer Action Network – Research, Patient Support, Resources (pancan.org) 

Lustgarten Foundation Pancreatic Cancer Research

Home - Lustgarten Foundation: Pancreatic Cancer Research 

National Pancreatic Cancer Foundation  

Home - National Pancreatic Cancer Foundation (npcf.us) 

Hirshberg Foundation for Pancreatic Cancer Research

Home - Hirshberg Foundation for Pancreatic Cancer Research 

Pancreatic Cancer Action

Pancreatic Cancer Action | Saving lives through early diagnosis 

Project Purple: A World Without Pancreatic Cancer

Home | Project Purple | A World Without Pancreatic Cancer 

National Pancreas Foundation

Home - National Pancreas Foundation 

Seena Magowitz Foundation

Seena Magowitz Foundation - We Fund Pancreatic Cancer Clinical Trials 

Pancreatica

Confronting Pancreatic Cancer: Symptoms, Signs, Causes, Treatment (pancreatica.org) 

10 Things to Know About Neuroendocrine Tumors (MD Anderson) While the name “neuroendocrine” implies that these tumors involve both nerve cells and hormones, they are mainly thought to come from endocrine cells. The “neuro-” is more of a quirk of history. Neuroendocrine tumors are cancers that can develop anywhere endocrine cells are present. Endocrine cells help regulate various body functions, such as growth, reproduction and metabolism. They are distributed throughout the body, but the most common places for tumors to develop from them are in the lungs, small intestines, and pancreas.

https://www.mdanderson.org/cancerwise/neuroendocrine-tumors--9-things-to-know.h00-159379578.html

Pancreatic Neuroendocrine Tumors (Islet Cell Tumors) Treatment (PDQ®)–Patient Version (NCI) Key Points: Pancreatic neuroendocrine tumors form in hormone-making cells (islet cells) of the pancreas. Pancreatic NETs may or may not cause signs or symptoms. There are different kinds of functional pancreatic NETs. Having certain syndromes can increase the risk of pancreatic NETs. Different types of pancreatic NETs have different signs and symptoms. Lab tests and imaging tests are used to diagnose pancreatic NETs. Other kinds of lab tests are used to check for the specific type of pancreatic NETs. Certain factors affect prognosis (chance of recovery) and treatment options.

https://www.cancer.gov/types/pancreatic/patient/pnet-treatment-pdq

Neuroendocrine Tumor Research Foundation The mission of the Neuroendocrine Tumor Research Foundation is to fund research to discover cures and more effective treatments for neuroendocrine cancers. The Neuroendocrine Tumor Research Foundation is committed to improving the lives of patients, families, and caregivers affected by neuroendocrine cancer by providing information and educational resources.

https://netrf.org/

Neuroendocrine Cancer Awareness Network (NCAN) is a non-profit organization dedicated to raising awareness of Neuroendocrine Cancer, providing support for caregivers and people with NETs, and funding for NET cancer research. Since 2003, it has been our mission, or as we like to say, our passion, to educate and support the NET community as a whole. That’s our thing.

https://netcancerawareness.org/

International Neuroendocrine Cancer Alliance (INCA) INCA is the global voice for patients with neuroendocrine cancer and genetic neuroendocrine tumors (NETs) and their carers with a mission to: raise awareness about all types of NETs; push for scientific advancements with a focus on identified unmet needs; and provide a platform for global collaboration to address the many challenges NET patients and the medical community face, in securing a timely diagnosis and accessing optimal treatment, support and care

https://incalliance.org/

The Carcinoid Cancer Foundation Serving the Neuroendocrine Tumor (NET) Community for Over 50 Years. The Carcinoid Cancer Foundation began as the Carcinoid Tumor and Serotonin Research Foundation in 1968 when the NIH fund for rare cancers was terminated. The name was changed to the Carcinoid Cancer Foundation in 1995. It is a nonprofit organization chartered by the State of New York for the purpose of encouraging and supporting education and research on carcinoid and related neuroendocrine cancers.

https://www.carcinoid.org/

LACNETS Learn. Advocate. Connect. A Neuroendocrine Tumor Society The mission of the Learn Advocate Connect Neuroendocrine Tumor Society (LACNETS) is to provide a community of support and education for patients (those with neuroendocrine cancer) and to advocate for all people impacted by this rare disease by expanding awareness and by voicing the patient’s perspective in collaborative dialogue with healthcare professionals.  We aim to improve the quality of life of those with neuroendocrine cancer by offering support and expanded access to information on diagnosis, treatment options, research, and resources. LACNETS makes it possible for patients to share experiences, encouragement, and hope.

https://www.lacnets.org/

NPF Pancreatic Cancer Centers of Excellence (National Pancreas Foundation) NPF Centers of Excellence are premier healthcare facilities that focus on the multidisciplinary treatment of pancreas disease, treating the “whole patient” with a focus on the best possible outcomes and improved quality of life. There are currently over 170 NPF Centers of Excellence throughout the United States.

https://pancreasfoundation.org/patient-resources/npf-centers-of-excellence/

HIPEC Surgery: What You Need to Know (Johns Hopkins Medicine)

https://www.hopkinsmedicine.org/health/treatment-tests-and-therapies/hipec-surgery-what-you-need-to-know

Hyperthermic intraoperative intraperitoneal chemotherapy (HIPEC) as an adjuvant to pancreatic cancer resection (2021)

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8100705/

Cytoreduction with Hyperthermic Intraperitoneal Chemoperfusion for Pancreatic Cancer with Low-Volume Peritoneal Metastasis: Results from a Prospective Pilot Study (2023)

https://pubmed.ncbi.nlm.nih.gov/35972667/

Intraperitoneal chemotherapy in the management of pancreatic adenocarcinoma: A systematic review and meta-analysis (2022)

https://www.sciencedirect.com/science/article/abs/pii/S0748798322004802

Endurance Athlete Enduring Pancreatic Cancer Treatment (Let's Win Pancreatic Cancer)

https://letswinpc.org/survivor-stories/cytoreductive-surgery-pancreatic-cancer-treatment/

A 4-drug chemotherapy regimen improves survival in stage 4 pancreas cancer (UCLA Health 2023)

https://www.uclahealth.org/news/release/4-drug-chemotherapy-regimen-improves-survival-stage-4

NCCN Patient Treatment Guidelines for Pancreatic Cancer

https://www.nccn.org/patients/guidelines/content/PDF/pancreatic-patient.pdf

Pancreatic Cancer Surgery Types

https://pancan.org/facing-pancreatic-cancer/treatment/treatment-types/surgery/

Radiation Therapy for Pancreatic Cancer

https://pancan.org/facing-pancreatic-cancer/treatment/treatment-types/radiation-therapy/

Pancreatic Cancer (City of Hope)

https://www.cityofhope.org/clinical-program/pancreatic-cancer

An mRNA vaccine to treat pancreatic cancer (NIH, 2023) An NIH-funded research team led by Dr. Vinod Balachandran from Memorial Sloan Kettering Cancer Center (MSKCC) have been developing a personalized mRNA cancer-treatment vaccine approach. It is designed to help immune cells recognize specific neoantigens on patients’ pancreatic cancer cells. Results from a small clinical trial of their experimental treatment were published on May 10, 2023, in Nature.

https://www.nih.gov/news-events/nih-research-matters/mrna-vaccine-treat-pancreatic-cancer

Advancements in medical treatment for pancreatic neuroendocrine tumors: A beacon of hope. (Giri, Somdatta, and Jayaprakash Sahoo. World journal of gastroenterology vol. 30,12 (2024): 1670-1675. doi:10.3748/wjg.v30.i12.1670) This editorial highlights the remarkable advancements in medical treatment strategies for pancreatic neuroendocrine tumors (pan-NETs), emphasizing tailored approaches for specific subtypes. Cytoreductive surgery and somatostatin analogs (SSAs) play pivotal roles in managing tumors, while palliative options such as molecular targeted therapy, peptide receptor radionuclide therapy, and chemotherapy are reserved for SSA-refractory patients. Gastrinomas, insulinomas, glucagonomas, carcinoid tumors and VIPomas necessitate distinct therapeutic strategies. Understanding the genetic basis of pan-NETs and exploring immunotherapies could lead to promising avenues for future research. 

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11008371/ 

NCI: Prostate Cancer

Prostate Cancer—Patient Version - NCI 

Prostate Pathology (American Cancer Society)

Prostate Pathology | Understanding Your Pathology Report | American Cancer Society 

ZERO Prostate Cancer: ZERO is the primary destination for all impacted by the disease to convene, get support and education, and come together as one united voice to create a better future for the prostate cancer community. 

ZERO Prostate Cancer Connects People to Lifesaving Support | ZERO Prostate Cancer (zerocancer.org) 

Prostate Cancer Foundation

PCF-Curing Together | PCF | Prostate Cancer Foundation | Prostate Cancer Symptoms 

Prostate Cancer Research Institute

Prostate Cancer Research InstituteThe Prostate Cancer Research Institute (pcri.org) 

Prostate Cancer Impact Alliance

Prostate Cancer Impact Alliance - Urology Care Foundation (urologyhealth.org) 

Movember: Prostate Cancer True North

Movember - Men's Health - Prostate Cancer 

American Prostate Cancer Foundation

American Prostate Cancer Foundation – A Non-Profit 501c3 Foundation (amprostatecancerfdn.com) 

Fans for the Cure: Prostate Cancer Awareness and Education

Prostate Cancer Awareness and Education | Fans for the Cure 

Male Care Men Fighting Prostate Cancer Together

malecare.org – Men Fighting Prostate Cancer, Together.  

National Alliance of State Prostate Cancer Coalitions

National Alliance of State Prostate Cancer Coalitions - Home (naspcc.org) 

Focused Ultrasound Treatment for the Prostate (FUS)

Prostate Cancer  - Focused Ultrasound Foundation (fusfoundation.org) 

Prostate Health Education Network (PHEN) PHEN's mission is to eliminate the African American prostate cancer disparity, and to increase the overall support and resources for a war on prostate cancer that will lead to a cure for the disease for the benefit of all men.

https://prostatehealthed.org/index.html 

NCI: Skin Cancers (including Melanoma)

Skin Cancer (Including Melanoma)—Patient Version - NCI 

NCI: Soft Tissue Sarcoma

Soft Tissue Sarcoma—Patient Version - NCI (cancer.gov) 

Sarcoma Coalition

Home - Sarcomacoalition.us 

The Skin Cancer Foundation

The Skin Cancer Foundation Official Website - The Skin Cancer Foundation 

American Academy of Dermatology

Skin Cancer Resource Center (aad.org) 

SkinCancer.net

Skin Cancer Health Information & Community 

National Council on Skin Cancer Prevention

National Council on Skin Cancer Prevention 

Prevent Cancer Foundation: Skin Cancer

Skin Cancer – Prevent Cancer Foundation 

The Skin Cancer Education & Research Foundation

The Skin Cancer Education and Research Foundation – Home - Skin Cancer Education and Research Foundation (skincancerinfo.org) 

Skin Cancer Consortium for Advocacy, Research & Education (Skin Cancer C.A.R.E.)

https://skincancerinfo.org/

AIM at Melanoma Foundation

AIM at Melanoma - Reshaping the Future Together - AIM at Melanoma Foundation 

Melanoma Research Foundation

Home - Melanoma Research Foundation 

Melanoma Research Alliance

Melanoma Prevention, Treatment, Research & Resources - Melanoma Research Alliance (curemelanoma.org) 

American Melanoma Foundation

The American Melanoma Foundation 

Melanoma Action Coalition (MAC) The Melanoma Action Coalition was established in 2014 by leaders of seven community-based foundations focused on increasing awareness about melanoma, providing education about sun safety, and raising money for melanoma research. Originally based in the mid-Atlantic region of the United States, we have since grown to include organizations and individuals from throughout the United States and Canada. We continue to welcome new members. Organizations across the country are working every day to tackle melanoma, the most deadly of all skin cancers. Many of these organizations are grass-roots foundations established and led by those who have been touched personally by this disease. The Melanoma Action Coalition accelerates the end of melanoma by bringing together these organizations, who are at the forefront of this fight, and providing the support they need to amplify their effectiveness and impact. MAC also welcomes individual melanoma advocates and fundraisers.

 Home (melanomaactioncoalition.org) 

Merkel Cell Carcinoma (MCC) (Cleveland Clinic) Merkel cell carcinoma is a rare but aggressive type of skin cancer that can be life-threatening. The cancer affects your skin’s outer layer, or epidermis. It often spreads to lymph nodes and organs. UV light exposure, a weak immune system, age and viral infection may cause this cancer. Healthcare providers surgically remove the tumor, but the cancer often comes back.

https://my.clevelandclinic.org/health/diseases/17971-merkel-cell-carcinoma

Merkel Cell Carcinoma Treatment PDQ (NCI)

https://www.cancer.gov/types/skin/patient/merkel-cell-treatment-pdq

Merkel Cell Carcinoma Overview (Skin Cancer Foundation)

https://www.skincancer.org/skin-cancer-information/merkel-cell-carcinoma/

Jimmy Buffet's Death Puts Merkel Cell Carcinoma (MCC) in the Spotlight (Skin Cancer Foundation) Merkel cell carcinoma is a rare and aggressive type of skin cancer that affects the top layer of skin, known as the epidermis. MCC is about three to five times more likely to be deadly than melanoma, and is 40 times rarer than melanoma, with about 3,000 new cases diagnosed in the U.S. every year.  The disease has a high risk of metastasizing (spreading) within two to three years after initial diagnosis. Once MCC has spread, treatment becomes increasingly difficult. Fortunately, MCC survival rates are improving due to advances in the field of immunotherapy.  

https://www.skincancer.org/blog/jimmy-buffetts-death-puts-merkel-cell-carcinoma-in-the-spotlight/

NCI: Carcinoma of Unknown Primary (CUP)

Carcinoma of Unknown Primary—Patient Version - NCI (cancer.gov) 

Cancer of Unknown Primary Foundation-Jo's Friends (CUP Foundation) Our mission is to ‘Make the Unknown, Known’ by: Providing information and support to CUP patients and those who care for them; Raising awareness of CUP,; Promoting improved diagnosis and treatment; and Undertaking, encouraging and supporting CUP research with the ultimate goal of seeing the end of CUP.

https://cupfoundjo.org/

Rare Cancers, Cancer Subtypes, and Pre-Cancers (ACS) Long list of rare cancers

https://www.cancer.org/cancer/types/rare-cancers.html

Global Genes: Allies in Rare Disease Global Genes is committed to providing information, resources and connections to all communities affected by rare diseases.

Homepage - Global Genes 

Fibrolamellar Cancer Foundation: FLC is a rare liver cancer that primarily occurs in adolescents and young adults who have no history of liver disease. 

Fibrolamellar Cancer Foundation Home - Fibrolamellar Cancer Foundation (fibrofoundation.org) 

The EHE Foundation: Epithelioid Hemagioendothelioma (EHE) Our mission is to find treatments and a cure for this rare cancer by advancing research and driving collaboration between patients, researchers, and clinicians.

The EHE Foundation - Epithelioid Hemangioendothelioma (fightehe.org) 

Acinic Cell Carcinoma of Parotid Gland (Quyen, Huynh-Thi Do et al. Radiology case reports vol. 18,6 2194-2198. 11 Apr. 2023, doi:10.1016/j.radcr.2023.03.017)

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10123319/

DDFRA DIPG/DMG Research Funding Alliance: WE ARE FIFTY + SEPARATE NON-PROFITS & FUNDS which make grants together for research, trial access and data integration or utilization. We are passionate about providing funds to develop an understanding of Diffuse Midline Gliomas, including Diffuse Intrinsic Pontine Gliomas.  

DDRFA – Powered by Families because lives depend on it. – DDRFA – Powered by Families because lives depend on it. 

Cholangiocarcinoma Foundation (bile duct cancer) Founded in 2006, the Cholangiocarcinoma Foundation is a global 501(c)(3) non-profit organization and our mission is to find a cure and improve the quality of life for cholangiocarcinoma patients

https://cholangiocarcinoma.org/ 

National Leiomyosarcoma Foundation Providing education, advocacy, support, and research for the LMS Community as we move forward in the quest for the cure. Leiomyosarcoma is a rare cancer that originates in smooth tissue and can occur anywhere in the body. Our mission is to advance research in order to accelerate treatment options and offer supportive resource assistance to patients and caregivers throughout the diagnosis and treatment journey.

https://nlmsf.org/ 

EHE Foundation We envision a world where Epithelioid Hemangioendothelioma (EHE) is easily diagnosed and treatable. Our mission is to find treatments and a cure for the rare cancer, Epithelioid Hemangioendothelioma (EHE), by advancing research and driving collaboration between patients, researchers, and clinicians. The EHE Foundation, founded in 2015, is a nonprofit 501c3 organization dedicated to pursuing effective treatment for Epithelioid Hemangioendothelioma (EHE) and supporting EHE patients and their families. 

https://fightehe.org/

LeioMyoSarcoma Support & Direct Research Foundation (LMSDR) is run by volunteers dedicated to find better treatments for leiomyosarcoma and support patients and those who love them. All of us have been involved with leiomyosarcoma, either as patients, caregivers, medical providers or researchers.   

https://www.lmsdr.org/

National Organization for Rare Disorders (NORD) Since 1983, NORD has been a national steward and a steadfast partner helping those who battle and care for rare disease feel seen, heard, supported and connected. We’re a full-service, mission-driven nonprofit reimagining a future where every person with a rare disease, and their families live their best lives.

https://rarediseases.org/

Rare Diseases Report: Cancers (NORD, June 2023) This edition highlights the latest breakthroughs and remaining unmet needs in the management of rare cancers. In addition to celebrating the great progress that has been made in recent years, we also discuss new challenges, such as how the healthcare system can prepare to manage the growing number of rare cancer survivors who are living longer due to improvements in disease management.

https://rarediseases.org/wp-content/uploads/2023/08/Hem_Onc_NORD_Supp_0623_All_no-Ads_LR.pdf

Rare Cancer Alliance RCA's primary purpose is to disseminate information and provide support to all pediatric (childhood) and adult rare cancer patients. RCA's secondary purpose is to offer a consolidated venue to raise awareness and funding for rare cancer research, which seldom benefits from donations made to general cancer research organizations. 

https://www.rare-cancer.org/

VHL Alliance VHL (von Hippel Lindau disease) is a genetic disease that can cause tumors (benign or malignant) to develop in up to 10 different organs throughout a patient’s life. The VHL Alliance is a 501c3 non-profit focused on supporting patients, families, and caregivers affected by VHL. Founded in 1993, the VHL Alliance is the preeminent resource for patients, caregivers, researchers, and the medical community.

https://www.vhl.org/

International Waldenstrom’s Macroglobulinemia Foundation Waldenstrom’s macroglobulinemia (WM) is a rare, slow-growing cancer of the lymphatic system. Cancers of the lymphatic system are called lymphomas. WM is a type of lymphoma called non-Hodgkin lymphoma. Non-Hodgkin lymphoma is not a single disease; it refers to a group of different lymphomas that start in the lymphocytes (white blood cells). WM affects a specific type of white blood cell, called a B-lymphocyte or B-cell for short.

https://iwmf.com/

TargetCancer Foundation Rare Cancer research & Support. At TargetCancer Foundation, we believe everyone diagnosed with a rare cancer should have effective treatments and a chance to live, and works to advance the development of more effective and personalized treatments for people with rare cancers.

https://targetcancer.org/

Deadliest Cancers Coalition

https://www.deadliestcancers.org/

Rare As One Project Rare disease is anything but rare. More than 7,000 rare diseases affect over 300 million people globally. The vast majority are not well understood, and less than 5 percent have approved treatments. Yet worldwide, patients are meeting these challenges head-on. The Rare As One project is committed to uniting these communities in their quest for cures. We support patient-led organizations working to improve the lives of people affected by rare disease. We aim to lift up rare disease communities, providing them with resources and tools to be more effective advocates for—and partners in—research.

https://chanzuckerberg.com/science/programs-resources/rare-as-one/